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Glioma Tumor Vs Capillary Telangiectasia

by RickGriff, Jul 18, 2007 10:55AM
In June of 2006 I had an MRI scan done that showed a small 14mm lesion in the left temporal lobe.  My only symptom that I was complaining about before the MRI was lightheadedness and loss of focus (difficulty in concentration).  The first neurologist that saw me thought it was a possible AVM and had me follow-up with another neurologist who specializes in that area.  After seeing that neurologist he labeled the lesion as capillary telangiectasia but wanted me to follow-up with a neuro-surgon at a local cancer center to rule out a tumor.  Of course wouldn't you know it he believed the lesion to be a slow growing glioma tumor.  My wife had me go and get a fourth opinon from a local hospital that specializes in vascular disorders and that neuro-surgon also believed it to be a slow growing glomia tumor.  Since my origianl scan I've followed-up with a series of MRIs (every 3-4 months -- 4 total including the original) all of which have shown no growth of the lesion.  I also had a MR spectroscopy done that showed an elevated in choline levels but a normal creatine level.  I also saw another neurologist during the course of my follow-up studies and he believe it to be capillary telangiectasia.  My question is - is there a point where, using the serial MRIs, you can rule out the belief that the lesion is not a tumor?   When there are different opinions (2 - slow growing glioma tumor 2 - capillary telangiectasia) what advice should you follow?  I do not want to keep getting more and more opinions, nor do I want to follow-up with MRIs when they are not needed and the stress of not knowing.
Member Comments (1)

by ComeOnNow, Jul 24, 2009 01:49PM
To: RickGriff
Did you ever get an answer to this?  
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