Gliomatosis Cerebri--Straight answers please

  Diagnosis is confirmed. Doctors want to try whole-brain radiation,
  followed by chemotherapy (PCV). What can I expect regarding IQ, sight,
  hearing losses? There's not much info out there. I am inclined to do
  nothing and enjoy what little time I have, but I'm willing to undergo
  treatment if there's a reasonable chance of extending my life.
  Personaly...what would YOU do if faced with this?
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Thanks for the question. Gliomatosis cerebri is a difficult problem to treat but it is not a single entity. Not all GC is the same and some patients may respond better to therapy than others. I our experience we radiate the vast majority of our patients and I think it maintains quality of life longer. Risks of memory problems certainly exisit but the options are not that great otherwise. If the tumor type is anaplastic astocytoma or olig then PCV is a reasonable treatment. This however is contoversial and not standard and I think it depends on how you are feeling. If it is a straight answer you want, knowing of course thta we have not seen you your pathology or your scan that radiation should be strongly considered and see how you are. If you wish a referral to CCF call 216 444 5559.
This information is provided for general medical education purposes only. Please consult your doctor regarding diagnostic and treatment options.