HELP! So many symptoms

[kenneltech]

I have posted on a number of forums, and I have been told that the kind of doctor I need to see is a neuro-diagnostician, but I don't know.  Hope someone here can help.

Two years ago, I gained about 85lbs. in a very short span of time, this has happened to me twice before in my lifetime, and no doctor has ever figured out what was wrong with me.  Now, my whole body is falling apart, and I was a very active, healthy person until just recently, (within the last 6 months).  I have had to have a scope put down my throat and have my esophogus stretched as it was too small.  Then they told me I have a sticture at the top of my stomach and my stomach muscles are 'paralyzed," so I'm taking a drug called Motilium.  Then, my blood pressure started going up and down,  high and then normal, now it is high.  Went to a cardiologist, and did all kinds of tests (except a tilt, which I don't know what that is?),l and now I have diastolic heart failure, and have been put on ditiliazam, and a diuretic for edema, because this heart problem causes water retention.  Then, they discovered that I have hypothyroidism, so I'm on levothyroxin, then they said I was pre-diabetic, so I'm on metformin.  I have horrible depression which they can't control with any meds, and I have EXTREME exhaustion, can barely do two things in one day!  I also have chronic thrush under my breasts and am getting spider veins on my legs, a log of them.  Plus, I am getting skin tags everywhere.

I get flushed and am extremely intolerent of the heat, which I never used to be, and they took some blood work and said I had a "tracer" that was positive for cancer.  They isolated it to my liver and stomach area.  They did an MRI and I have spots on my liver, so they  did another one, and now I have a mass, but they say it's atypical.

I have rapid heart beats, at some points, I throw PVC's, and have had to go to emergency 3 times, they don't know why this happens.  My blood pressure also has gone up.

I've had cortisol tests (negative), all heart related testing, thyroid checks, TSH3-4, blood work, they have no idea.
I was told I could have dystautonomia and to see a neuro-diagnostician, but I don't know who I should see!!  I need hlep with that!  I truly feel like I'm about to die, I feel that badly.

I checked out that dystautonomia site, and there isn't one doctor here (CO) that specializes in autoimmune diseases, figures!  Another thing that was mentioned was POTS.  Does anyone know anything about these, and am I on the right forum?

Any help would be appreciated, I need to know if I'm going down the right trail, as far as doctor's are concerned.  Endocrinologists haven't done anything for me, and I've been to 4!

Thanks

[kenneltech]

Yes, you are right, I do need to lose weight, and that's how this whole entire thing got started!  This is the third time I have gained an enormous amount of weight, and they don't know why.  This is another issue I am dealing with. Yes, I worked with animals for years, until all this started to happen.
Thank you for your post, I have been on the dysautonomia site, and no one has any help there, they told me to see a neuro-endocrinologist, and I haven't found one that is in COLORADO!!!

[ggreg]

I saw your second post asking that someone answer this post.  There is a forum here at MedHelp that is just for Dysautonomia, not sure if you were referring to visiting that site or another one, but you could post there and folks would know the answers to that particular part of your questions.

I imagine you do feel awful, because you are have hypothyroid, high blood pressure, your tummy is slow to empty, and you're pre-diabetic.  But you are receiving medications for all of these conditions.  The one thing you could do is go back to whomever is prescribing your thyroid medication, because it is challenging to get the dose correct.  Having a goofed-up thyroid can cause a world of problems.

Another thing you could do, altho it may be difficult because of your thyroid, is to lose weight.  It's hard for people who have hypothyroid to lose weight, but it can be done.  Just getting 20 pounds off, which you could do with a month of vigorous exercise and a high protein/ low carb diet, would help with a lot of your symptoms.

I see your user name is kenneltech, and I used to work with dogs and could lift a German Shepherd Dog from the floor up to the vet table in one smooth motion.  Imagine if you had to lift one of those dogs like that... well, that's what you're doing every day that you get up out of bed!  So, that's how come I said lose weight, easiest and quickest way to feel a lot better.