I think you are analyzing the problem very well. A discussion about this with an endocrinologist is a great idea. It can't hurt and it may provide you with an alternative to surgery, or at least temporize. Make sure your neurosurgeon is aware of the ups and downs of your symptoms. You don't want to miss a real danger sign.
God luck, come back and let us know what the endo said. Quix
My son was diagnosed with pseudotumor cerebri when he was 7 months old (yes, that's rare). He was on Diamox (acetazolamide) for well over a year, which brought his ICP down to about 200, which is still not considered normal for a child but did relieve his headache and swelling of the optic nerves. Interestingly, though, during this time his growth rate slowed significantly, and the 2-hour+ growth hormone test (whatever it's called) showed low growth hormone. He received a V-P shunt when he was 2, and within about a 6-12 month period, he got back on track growth-wise.
I know this isn't exactly the hormonal problem you're talking about, but the fact that my son had an endocrine problem along with his pseudotumor cerebri seems to substantiate your concern.
Here's the thing, though. I found a study (admittedly with a small number of participants) that showed that Diamox slows growth in children. So was it the increased ICP or the drug? Who knows.
About the Chiari. My sister was diagnosed with that and had the surgery, but it was not the miracle she hoped it would be. In fact, she has had a multitude of other problems since.
I hope your visit to the endocrinologist provides some answers.