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Neurology  (Expert Forum)
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Head tremor and MS
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Head tremor and MS

by head shaker, Nov 12, 2006 12:00AM
For the past two years, my head has been shaking, rapid and side to side.  It started episodically, and now is all the time.  I also feel pressure in my head.  I've had multiple tests and have seen two neurologists.  One diagnosed MS, the other essential tremor.  There is a brain lesion on MRI, but it is not characteristic (looking) of MS, according to the report.  All other symptoms have been mild and my main problem is the shaking and uncomfortable, swollen, feeling head.  History:  In addition, I've had a history of seizure since 1995 (a total of 3).  I also sustained a mild concussion in an auto accident as a teen 30 years ago.  I've had no treatment, except PRN Inderal, which I rarely use.  Both neurologists agree that I should not, yet, start the disease modifying medicine for MS.  Is there anything else that could be causing this?  Is there anything else I can do other than "wait and see?"  Sometimes I feel like a sitting duck.

by CCF-Neuro-M.D.-SH, Nov 27, 2006 12:00AM
First of all, keep in mind that I am unable to diagnose you because I am unable to examine you, this forum is for educational purposes.
   The symptoms you describe are consistent with essential tremor (ET), which can effect the head, the limbs or the voice.  The most common is the head, and many patients do not notice their head is shaking until they are told.  There are 2 medications that are the standards for treating ET, propanolol (which you are on PRN) and primidone (an anti-seizure medication).  There are also 2 newer medications that are being used to treat ET, which are Neurontin and Topamax (that are also anti-seizure medications).  There has also been some moderate sucess with Botox injections and even brain surgery (deep brain stimulation) for medical refractory cases.  Deep brain stimulation seems to work better on limb tremors that head tremors.
   I would recommend that you take the Inderal (propanolol) daily and if needed add primidone.  If these do not work then you may give a trial to neurontin or topamax.  Most tremors do not go away with medications, but can be reduced by 50-60%, that can significantly improve your quality of life.
  I hope this has been helpful.
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