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Posted by CCF MD on December 21, 1997 at 14:15:27:
In Reply to: Headache and inflamation of the left eye posted by Ashok Sethi on December 02, 1997 at 11:09:06:
: Need help with treatment of my friend's wife.
She has been suffering from this problem for the last two years.
Symptoms: Inflamation of the left eye, associated with extreme
severe pain through the whole left face and head to the base
of the neck in the back, ear ache (throbing and shooting pain,
blurred and double vision in the left eye.
Treatments so far: Was on Prednisene and Percacet for 6 months
starting at 80mgs/day and tapered off.
It was an opinion of a neuro opthalmologist that it may be
Sacoidosis - but the Gallium Scan, PFT and Anergy Panel did
not support this diagnosis.
A CAT-Scan of the orbital showed tumors of the orbitals.
Chest X ray showed a presence of a Lynys on the lung.
Other medical history:
- synthroid for Hypothyroidism
- Pondomin and Fastin for weight reduction
- diagnoised with Lyme Disease in June 1996 and treated with
Cefrim and Prednisene.
Would appreciate response from this discussion forum to help
her advise for her cure and reccommend a specialist/other
alternative treatment etc.
Thanks in advance.
I must admit the whole story sounds alittle confusing to me. First of all it would
be important to know how the diagnosis of lymes disease was made and if it could be
somehow related? How was the diagnosis of sarcoid made? Did they do an ACE (angiotensin
converting enzyme level)?, You said she had Lynys in her lungs?? - does that mean she had
hilar lymphadenopathy (lymph glands enlarged in the lung and can be seen in sarcoid)? Did they biopsy her lung?
Did she have a lumbar puncture? (needle placed into spinal canal and fluid take)? You said the CT scan of the orbits showed tumors??? - did you mean this?
As you can tell from my answer a number a questions need to be addressed. If she wishes a CCF referral
you can can 216 444 5559 for the department of Neurology or 216 444 2030 with Dr. Kosmorsky
a neuro -ophtholmologist.
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