Hi, I've been suffering from some neurological episodes for the past few years.
They started by being very occasional and rare, perhaps once a month and
have slowly built up to 3-5 times a day now. Here's some detailed info:
Symptoms: In order of occurrence:
Feel hungry, jaw muscles clench, but facial muscles around lips and cheeks relax,
lower facial muscles relax, trouble articulating words, muscles around eyes relaxes,
shallow breathing, confusion, difficulty thinking and speaking, dexterity in the hands
goes, general weaknes all over body, feels like body shutting down.
Both friends, family and doctors have witnessed these attacks.
Episodes are stopped by eating something, and can also be prevented by eating A LOT
and very regularly, say once every 1.5hrs, but cannot be stopped by a high glucose drink.
Sometimes if I can't get to some food i will also have a rush of adrenalin and panic...
however, these are secondary. I don't ever have palpitations or adrenalin leading up to
an episode.
I often get pains just below my bottom right rib that coincides with the attacks, although
this is not always consistent.
I also suffer from general underlying lethargy constantly.
I have regular bowel movements. But the episodes are reduced if I get constipated or
don't go regularly every morning.
Other info:
I have/had a heart murmur/hole in my heart.
I had an intersucsseption when I was 13 months old. No bowel removed.
My tummy is very sensitive and can become constipated and swollen very easily.
I didn't get an episode for 48hrs when I took vitamin b1, b3, b12 and folic acid supplements
once, and my lethargy completely disappeared.
Tests so far: All test came back normal.
Blood glucose levels (both during attacks and after fasting), calcium, sodium, potassium,
magnesium, liver, kidney, Vitamins C, B12, B3, bone density, thyroid (TSH, T3, T4),
EEG (including epilepsy tests), ECG, and nerve conductivity.
Any ideas?