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Help me

Help me

had a staph infection in my salvatory glad on my right side which caused me to ahve extreme pain in my head on the right side. They said it was just a part of the staph infection but after being hospitalized twice and on many antibiotics and pain medications and visits with specialists and another hospital visit finally an ER doc said he felt it was trigeminal neuralgia. Well it is on my right side from the base of my skull all the way to the front to my nose and righte eye and jaw. I have extreme pain in around my right ear and jaw. After going to the neurologist she basically blew me off and sent me to pain management. Basically she changed one medication gave me a refill of narcotics and that was it. Well over a month later I finally got into a pain magement specialist and had an MRI, which said I was fine, and that doc said he thinks it is occipital neuralgia instead of TN. I am more confused than ever and in the same amount of pain as I have experienced since day one. I am slowly breaking down and dont know how much more i can take but the doctors are blowing me off. I am supposed to have a temp nerve block tomorrow but am so skeptical because of different opinions from every doctor I meet. I am on baclofen, percocet and trileptol. The percodet is all that helps because it helps take the edge off and allows me to functions somewhat and the baclofen helps a bit but it isnt consistant. I need some guidance on all this. I am hoping that this nerve block helps but since all the doctors have differing opinions about which nerve it is I am skeptical.
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About all I can tell you is that I saw a program on "Misdiagnosis" or whatever the name is of that TV show that discusses unusual medical cases.  I barely remember the details, but the woman in the program had a salivary gland problem in her face on one side, and she was misdiagnosed for quite a while.  I wish I could remember what the deal was on her, but you can go to that TV program's website, and you should be able to find that program discussed, it might help you.
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