I have my health progressively deteriorating over the last few years, and starting from about 2 years ago all symptoms seem to point to ALS. Right now, I have:
1. Lung problems: MEP 48%, FVC 80%, losing breath after a short talk or a fast walk
4. Left hand is clumsy and feels lazy
5. Very bad aerophagia
6. Often difficulties with swallowing
7. Difficulties with typing with both hands - Iam using only right one now
8. Mild but visible muscle atrophy in hands and arms
9. Mild weakness in the left leg and left hand
10. Mild slurring
My deep tendon reflexes are brisk.
My work requires a lot of typing and a lot of speaking at meetings, so I am having enourmous difficulties there. My manager actually told me many times that I clearly need medical help, and he is trying to make arrangements wherever he can, but still it is very hard to keep carrying on.
So... I visited my local neuro, and even a specialized ALS clinic. They did EMG and NCV studies, both came out normal, so their dx always was: benign fasciculations, the rest is anxiety. I had total of 3 EMGs over 2 years, but only one of them included all limbs. The last EMG was in December (2 limbs + tongue).
I don't feel that I can take that dx any more. I have deteriorated to the point where I have to make major adjustments to all aspects of my life, and it is only due to the good nature of the manager that I still have my job. Where could I get a thorough EMG, whatever additional tests needed, and get a dx ? I am ready for any dx, including ALS (which, I am sure, is what it will be), but I need a dx. I live in Nothern California.
Thanks for writing in.
Yes you definitely need to undergo further evaluation with the symptoms that you have presently. Please refer to the links below you may be able to find a neurologist in your area.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.