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Huntington's Disease

by wyrickc, Nov 20, 2008 06:10PM
Can you suggest a doctor for Huntington's Chorea near Roanoke, VA.  The diagnosis has already been made, however, the doctor admits he has never treated anyone with this disease and said, "Come back to see me in three month".  We would like to find someone that hopefully can offer meds to slow the progression.  Thanks.
Member Comments (1)

by ntheloop, Apr 01, 2009 09:25PM
To: wyrickc
Only use an HDSA Center of Excellence (CoE).  Nobody else knows what they're doing, I promise you that.  Also, please register at hdtrials.org asap.
There's a CoE at the University of VA (in Charlottesville); their info is at:
http://www.hdsa.org/living-with-huntingtons/family-care/centers-of-excellence/va.html
Hope this helps.  Good luck.
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