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Hydrocephalus Pineal Cyst nightmare!
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Hydrocephalus Pineal Cyst nightmare!

I am 47 year old female, was diagnosed with Psuedotumor Cerebri in 2007/ Opening pressure on LP was 44. MRI revealed 12mm Pineal Cyst- Flattened Pituitary- and ? Persistant fetal origin of the left posterior artery? What the world is that? No one has answered this yet. I have seen 4 neurologists, endocronologist, opthoneurologists- and NOT ONE THING has been done nor explained.

I was given Diamox- later added Gabapentin- Pristiq- and so far it seems I have chased my tail in circles. My brain is swollen on CTscan just a few weeks ago ER visit. I have sleep trouble where I will either go thru no sleep at all to sleeping for up to 20 hours at a time, severe fatigue, chronic headaches, I went from a very high spirited lady to barely functioning. I am too tired to do anything. I am in Cincinnati and willing to travel to find ANSWERS! No MRI has been ordered yet to check on status of pineal cyst. HELP!!!!!!!!!!


This discussion is related to pineal cyst and headaches.
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5 Comments Post a Comment
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Avatar_m_tn
What has happen since your post in 2009?  I am very interested because our daughter has a cyst the size of 14 x 12 mm.

Thank you,
milfamily
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Avatar_f_tn
Hi my daughter age 14 also has one.  Have you had any luck?  She was just diagnosed a week ago.
Thank you,
Sheri
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Avatar_f_tn
Hi Milfamily,
Any progress?  My 14 year old daughter has a 2nd opinion at Cleveland Clinic in Jan.  Yesterday, she was too tired to get out of the car after I picked her up from school.  I just want it out!
Thank you,
Sheri
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Avatar_f_tn
DONT GET SURGERY TO REMOVE PINEAL CYSTTRUST ME I KNOW I HAVE HAD THE SURGERY.
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Avatar_n_tn
Hi, Onelife867:

Please explain in more detail why you are against pineal cyst surgery.

Thanks

kennyjou2003
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