I just can't give up!

[rita59]

About a year and half ago after a taking a morning after pill all my problems started. After taking the pill the next morning i woke up with sever headache nausea and vomitting. I went to emerg and they said it's the side effect of the pill. then for almost 2 weeks i i felt extreme fatigue, very rapid and shallow pulse and shortness of breath that would be like an attack. i also felt very uncomfortable in my spine. Everything resolved but then one month after i had another attack which started so suddenly and was again the same symptoms. but this time i've lost my appetite lost 20 lbs, sinus congestion, sleep problems, dizziness, anxiety. I've done so many test...vitamin deficiency, ANA, RF, Hormones, CT scan of spine and head with and without contrast, Lumbar puncture, endoscopy, lyme test and many more blood works. But all came back NEGATIVE. and my symptoms resolve on their own after 5 months. Then now after having a bad cold i started to feel like that before, except this time is only sinus problems, headaches usually on left side my head starting from above the eyebrow all the way to my neck,pressure in sinuses and back of the head, lower back pain and tingling with no weakness in left calf and crawling sensations in small spots in my left foot that comes and goes, and occasional twitching in different part of my body. I also noticed an increase in floaters in my eyes which my optometrist said it's nothing to worry about. I seriously don't know what's going on with me .....i seriously need help cause i'm too worried that it might be a neurological disorder? HELP

[kimberleydust]

Insist on having an MRI on your brain and spinal column - don't rest until you get it.
good luck
Louise

[mineandours]

Hi. I noticed you mention Lyme was ruled out.  I have neurological Lyme and am being treated for it.  Over the course of 2 years, I saw 14 doctors and no one knew what was wrong and most tried to dismiss it as stress.  One thing I have learned is that Lyme cannot be ruled out by testing because the tests are too unreliable.  In order to be properly tested and diagnosed with Lyme, you must find a Lyme specialist.  He will treat you regardless of the test results because they know that Lyme can evade detection in both blood and spinal fluid.  If you improve on antibiotics, then he will continue to treat you. There is also the issue of the dangerous co-infections that can occur with Lyme.  Again, only a Lyme specialist can make these diagnoses because doctors are not schooled sufficiently in Lyme and its treatment.

Here's a symptoms list.  You may want to revisit the issue.
Carol   ***@****

Musculoskeletal System
Joint pain or swelling or tenderness
Stiffness of joints, back, neck
Muscle pain or cramps
Bone pain

Neurological System
Tremors or unexplained shaking (especially at night)
Burning or stabbing sensations in the body
Weakness or partial paralysis/stroke-like symptoms
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness
Sudden jerking of fingers or entire limbs
Pain in spinal column

General Well-being
Unexplained weight gain, loss
Extreme fatigue
Swollen glands
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you have not since felt well.  (If it was mild, you may not even recall this.)

Eyes/Vision
Double, blurry or dim vision
Increased floating spots
Pain in/behind eyes, or swelling around eyes
Over sensitivity to light
Flashing lights
Optic neuritis

Ears/Hearing
Decreased hearing in one or both ears
Buzzing or clicking noises in ears
Pain in ears or sound sensitivity
Ringing in one or both ears
Pressure or feeling of fullness in ears

Digestive and Excretory Systems
Diarrhea, irritable bowel
Constipation
Irritable bladder (trouble starting, stopping)
Frequent urination that is not normal
Upset stomach (nausea or pain)

Respiratory and Circulatory Systems
Shortness of breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Heart blockage

Psychological well-being
Mood swings, irritability, rage
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Overemotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep

Mental Capability
Memory loss (short or long term)
Confusion, difficulty in thinking, brain fog
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks

Head, Face, Neck
Unexplained hair loss
Headaches, mild or severe
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, cheek or face
Stiff or painful neck or creaking
Jaw pain or stiffness
TMJ – sudden onset, jaw spasms
Sore throat, hoarseness
Loss of sense of taste
Difficulty swallowing, throat spasms

Females only:
Unexplained menstrual pain, irregularity
Unexplained breast pain, discharge

Males only:
Testicular or pelvic pain

LYME FACTS
1. You do not have to recall a bite or have gotten the target rash to have Lyme disease. Less than 50% of people with Lyme do.
2. The tick that carries Lyme is as small as the period at the end of this sentence and their nymphs are nearly microscopic.  Ticks are on the move at 35ş and above. It’s a year-round problem.
3. You do not have to experience ALL of these symptoms to have Lyme disease.  It is also typical for many of these symptoms to come and go or occur once and never occur again.
4. It is possible to have Lyme disease and have a negative test result.  After Lyme bacteria enters your system, it tricks your immune system into no longer producing antibodies to fight it, hence, a negative test result. There are also other numerous factors that can affect the results.
5. Lyme bacteria hide in the spinal fluid, bone, tendons, muscle and nerve fibers and tissues and in many cases are not “floating” around in the bloodstream where they can be picked up on a test. It is a cousin to the syphilis bacteria and very difficult to eradicate.
6. It takes a LYME SPECIALIST to diagnose, test for and treat Lyme disease and any of its associated co-infections. To find one go to www.LymeNet.org.
or www.ilads.org.  Lyme specialists do not require a referral.  

NOTE: Everyone may have symptoms that appear on this list; however, it does not mean he/she has Lyme disease.  If one has numerous symptoms on this list and no other explanation for them, consider Lyme.