by Candace5440, Oct 27, 2009 12:44PM
I was diagnosed with chiari malformation type I in 2003 in 2004 I had decompression surgey done. I have continued to have daily headaches with some days worse than others, but over the past 2 months all of my symptoms have progressed to become hardly even tolerable. I am not even working now because my nueroligist said i could not work nor drive until he figured out what was wrong with me. My problem is that my original nueroligists said once the surgery was done i was healed so i found another neuro for a second opinion, and he said i may not have even needed to have had the surgery because he thought it could have been something else all along. My symptoms are daily headaches to the point of my head feelin as though it is going to explode, muscle pain(burning,shooting), weakness in my muscles, dizziness, extreme vertigo, shortness of breath, fatigue, pins and needles in hands and feet, trouble swallowing, trouble sleeping, night sweats, skin feeling as though sunburned without sunburn, diarrea, brain fog, memory loss, trouble spelling, double vision,back pain, stiff neck, full ears, loss of balance and coordination. I have seen a cardioligist who's only abnormal finding was that my blood pressure did not rise nor change during a stress test. I had MRI of my brain and cspine which came back normal. He did exstensive blood work which came back normal. I am awaiting the results of the lumbar puncture from the lab, but the intercrainal pressure measure during the puncture was 26 he did say that was high. Could this still be my chiari should I go get yet a 3rd opinion? Any suggestions of anyone in the Louisiana area???
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