Neurology Community
Increase in SUV levels in PET Scan.. for Neurofibromatosis
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Increase in SUV levels in PET Scan.. for Neurofibromatosis

My husband has Neurofibromatosis...and based on his pain level in his back his Neurologist decided to do a PET scan to see if any of his tumors on his spine were cancer.  In April of this year he had a PET scan done and we were told that it came back fine.  On Sept. 17 of this year my husband had a follow up and they told us that his scan was not fine...that there was increased level of Glucose in one area of his spine.  His doctor did not give me the SUV at that time.  The radiologist recommended a biopsy but his doctor did not want to do that because where the tumor is is not in a good spot.  His doctor wanted to wait 6 month to do anything to see if my husbands pain increased.  We were not comfortable waiting so we asked to have another PET scan.  He agreed.  So My husband got the PET scan on 10-27.  I called today to get the results and The nurse said that the spot has grown but the doctor is not concerned because he says the SUV increased because of it being a different machine.  She said he sent us a letter and some scientific info on it.  I don't understand though.  Why would he say it was okay to get another scan if the results could be ruined from having a scan 6 months ago?  I don't understand what this means now and the nurse didn't really answer my questions.  She said his SUV level is 2.2 this time.  But again I don't know what it was last time.. I just know she said that the spot has gotten bigger.  The doctor doesn't want to see us until Feb. Now but I am not comfortable with this. Can anyone explain this to me?  Thanks! Kristen
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
338416_tn?1420049302
Blank
jensequitur
Fort Worth, TX
620923_tn?1426651955
Blank
selmaS
Allentown, PA
293157_tn?1285877039
Blank
Wobbly
Avatar_m_tn
Blank
Ball123
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ
585414_tn?1288944902
Blank
ILADVOCATE
NY