Inner Tremors & Vibrations

[Nic1968]

Wow - I am SO glad that I found this blog.  I have felt so alone and helpless over the past six months.  

I returned from Cambodia in March sicker than hell.  Besides being careless with the water and what I ate over there, I also got bit by something that left a red circle around it.  It all started with diarrhea then evolved to flu like symptoms, severe internal shaking / convulsions, profuse sweating, weakness and pins & needles in limbs, burning throughout body, extreme joint pain (like fire),major tachycardia (racing heart), and CONSTANT vibrating in my limbs.

I have spent thousands of dollars on Emergency room visits, top UCLA doctors who don't have a clue, and hundreds of tests including a spinal tap & MRI's.  Nothing.  The only thing the doctors saw was a high ANA (anti nuclear antibody) number and an excess of vitamin B6 in my body.  

And every doctor has a different opinion:
Neurologist - this is "post viral neuropathy"
Rheumatologist - this is Fibromyalgia
Infectious Disease - "See a Neurologist"
Wellness Chiropractor - this is metals toxicity
Chinese Doctor - the virus is still in your body

I am currently on MANY vitamins, Propranolol for the tremors and tachycardia, amitryptaline for depression & nerve issues, and Gabapentin for the nerves.  Nothing has eradicated the vibrations in my limbs, although some days are better than others.  And some days I have just had enough and wonder where to go from here.  

Thank you for listening.  Any comments or suggestions would be appreciated.

[aryannevt]

Hi Nic. I don't have any ideas about what may be the answer to your question but did want to reach out. I went through a similar experience three years ago with symptoms doctors couldn't put in any one diagnostic basket. I think mine also started as a reaction to some type of viral or bacterial exposure.

I have a form of stiff persons syndrome. So having a disease that's rare and hard to place is something I'm very familiar with.

The vibrations sound like nerve hyperexcitability which can certainly follow an infection like the one you described. I would think that another infectious disease specialist may be the next go to. Unfortunately ER doctors aren't equipped to deal with something like this. There are plenty of articles linking infectious exposure to 'jumpstarting' a longlasting neurological process.

Just remember you're not alone. Keep reaching out for answers and support.

[Nic1968]

Hi Aryannevt - thank you so much for your input.  I am so tired of the neurologists and other doctors looking at me with baffled faces and having no suggestions or theories.  Every single day I am dealing with this nerve hyperxcitability and I don't know how to make it go away.  I've tried Magnesium, Gabapentin & Propranolol and it simply continues.  I've started seeing a Chinese doctor whom I've already spent thousands on for acupuncture and Chinese herbs but no improvement.  It sounds like you eventually got a diagnosis - thank goodness you at least know what you're dealing with.  Sending you best wishes.