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Is this myoclonus? If so, what kind of myoclonus?
by Hardy640, Mar 04, 2009 10:06PM
Almost a year ago, I developed a sleep disorder that was entirely attributable to random, involuntary jerking throughout my entire body. Over time, the jerks were occured not only when I tried to sleep, but also, throughout the day, obviously, while I was awake, and accompanied by bizarre twitching and/or "creep-crawly" sensations.
I have seen a neurologist who ruled out ALS, MS, and Wilson's and, so I deduced, also Parkinson's, given my age. However, he provided with no clear diagnosis and, upon having decided that I have nothing that is fatal and/or neurodegenerative, seems to have little interest when I call him to persist in, if not a diagnosis, at least, a course of treatment.
Having taken my own initiative, I've done a great deal of research and have decided that the symptoms I am exhibiting are in line with myoclonus (though, I understand, that this is not a diagnosis nor a disorder in and of itself). Even so, I've taken various medications, on the assumption that it was myoclonus (e.g. clonazepam, ropinerol, pramipexole, diazepam, GABA-inhibitors, amantadine, lamotrigine, etc.), none of which have had any real effect, save for the clonazepam (but, only to a limited extent, and not any longer).
Does anyone have any suggestions or is anyone at all able to relate to any of this?
I have seen a neurologist who ruled out ALS, MS, and Wilson's and, so I deduced, also Parkinson's, given my age. However, he provided with no clear diagnosis and, upon having decided that I have nothing that is fatal and/or neurodegenerative, seems to have little interest when I call him to persist in, if not a diagnosis, at least, a course of treatment.
Having taken my own initiative, I've done a great deal of research and have decided that the symptoms I am exhibiting are in line with myoclonus (though, I understand, that this is not a diagnosis nor a disorder in and of itself). Even so, I've taken various medications, on the assumption that it was myoclonus (e.g. clonazepam, ropinerol, pramipexole, diazepam, GABA-inhibitors, amantadine, lamotrigine, etc.), none of which have had any real effect, save for the clonazepam (but, only to a limited extent, and not any longer).
Does anyone have any suggestions or is anyone at all able to relate to any of this?
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First and foremost, I strongly urge you to immediately stop any medication that you are currently taking like clonazepam, ropinerol, pramipexole, diazepam, GABA-inhibitors, amantadine, lamotrigine on the assumption that the problem that you have is myoclonus. All these are drugs which should be prescribed by a qualified doctor only.
As you have correctly mentioned, myoclonus is a term referring to muscular jerks and not a disease in itself. If the sensations that you have are movements of a small group of muscles without the actual movement of any part of the body, then it is nothing to worry about. You may take vitamin supplements and calcium. That will resolve the issue. If there is movement ofa part of the body as well, then certain kinds of seizure disorders will need to be ruled out.
As you seem to be dissatisfied with your current neurologist, you may please consult another specialist