Is this potentially still Lyme Disease?

[Brodie]

I was treated for Lyme Disease last September after a clinical diagnosis - no test done.  I had 21 days oral doxycycline 200mg per day.   It helped a lot but I suffered bad rigours several times in the second week of treatment.  Just at the end of the course, I started getting numb sensations on my forehead and I seemed to be taking quite a long time to start to urinate.  This still comes and goes - but for the past 3 months I have also been gradually feeling more and more odd sensations and pain.  My hearing is often very sensitive, I have a very painful leg from knee to hip (can't tell if it is joints, muscles or what - seems like the lot) and one arm is also sore from shoulder to elbow.  I get 'cold' patches on both.   I also feel 'tickling' sensations over my scalp, at the bottom of my spine and behind my knees.   My doctor says it cannot still be Lyme and I am waiting to see a neurologist.  I just think it would be a very odd coincidence if all this started happenng just as I was being treated for Lyme but had nothing to do with it.   Any views?  I am really worried.

[CCF-Neuro-M.D.-PW]

I cannot comment on whether you had Lyme disease or not as I do not kow how they clinically diagnosed it, or have any results of testing

IF nerves were damaged during the course of the disease ie before treatment , it may take a relatively long time (weeks to months) for nerves to grow back/repair. This may explain the residual symptoms. Its not clear whether you had an MRI scan - this may need to be done to detect any spinal cord lesions causing difficulty in urination and/or signs of spinal root compression. Lyme can affect the spinal cord root (polyradiculopathy) and this may be causing your limb pain, an EMG would help to confirm a peripheral nerve or root problem

Discuss doing these tests with your neurologist
Good luck

[nofnway]

Hi, I'm having similar symtems.I am on my 2nd week of Doxycycline and am just now experiencing these symptoms.I am wondering if it is lyme disease or something neurological. Please let me know what you find out.Thanks, nofnway(FRAN was already taken)

[cblomquist]

Whatever you do, DO NOT take a quinolone antibiotic, especially LEVAQUIN. Doctors love to prescribe this **** - targeting UTIs and Lyme Disease among others. You could end-up with severe tendon and joint problems that are long-lasting, and that will just be the tip of the iceberg.  I didn't believe the masses until I was crippled last October.

[Buzzy Bee]

Hyperaccusis or sensitive hearing is a frequent Lyme symptom. In fact almost all your symptoms sound like Lyme disease to me or possibly symptoms of co-infections. There are many other tick-borne diseases besides Lyme disease and you can get more than one illness from the same tick. Each illness usually is treated with a different antibiotic.

Many many people (actual patients -- NOT doctors) are living proof that 2 weeks of doxy often does NOT cure Lyme. Go to http://www.lymenet.org  Read the posts under Flash discussion - Medical and post under Seeking a Doctor. You need to find a LLMD -- Lyme Literate Medical Doctor.

Best wishes