Have you ever considered the possibility of TMJ? My mom and sisters and I all have it and have received great relief from treatments by Dento-Cranial doctors. Some of our symptoms include headaches, neck/back pain, tingling of limbs, burning tongue, jaw pain and/or fatigue, burning sensation on top of head, face pain. I only have headaches, neck/back pain, and jaw fatigue, but my other family members have other symptoms. Until I started getting treated for it I never would have believe that having a problem with my jaw placement would have caused all those problems. It's worth a shot. Do you ever wake up with a sore or clenched jaw?
Thank you for your time. You are a big help to us hypochandriacs out there :-). Much appreciated.
Re,
Brian
I would have to agree that with the rather extended history of fasciculations in the absence of weakness, it is very unlikely that you have ALS. And the jaw fatigue without significant difficulty chewing/eating also does not sound typical of ALS. Columbia has an excellent neurology program and if your exam was normal there, then that should also be reassuring. GOod luck.