Just came back from my NEURO APPT!

[marline]

So, I told my neuro that some of my symptoms had gone away and some will still present.

Overall Symptoms:

when I swallow it hurts, feels like my throat has narrowed
muscle weakness all over (less then before but still present)
twitching (new symptom)
tingling (been constant for 2 months)
thick speech (2 months)
severe back pain mid back and up (got this a week ago from no where)
itching at night (sometimes)
fatigue
floaters for 7 months
pins and needles
eye pain (went away)
headaches (right where my eyebrows are)
electrical shock (mostly at nights all over my body)
insomnia (just started)
sore legs (for no reason)
face pain on the left side (got this 3 times in one day and it was gone)

Rheumo said no fibyro, no lupus, no lyme
Bloodtest all normal

I asked the neurologist about ms, he said I have nothing that points to ms, he said my symptoms were on both sides and that is not common in ms, also said floaters, and throat pain were also not common.

He said maybe fibyro because I said I had back pain and my legs felt like I had ran a marathon, so scheduled me to see a Rheumo again.

So I ask the neuro I am 25/f in good shape what in the world is wrong with me, he says I don't know because your symptoms don't point to one specific condition. When I mention ms again, he said NO. So he sent me to get mri's of my back I believe the t-spine and l-spine. Mind you I already have done 2 brain mri's and c-spine mri that were normal.

Just wanted to update you on my neuro visit, what do you all think?
__________________
25/F
Symptoms started May 2006
Brain Mri 2006 Normal
Cervical Spine Mri 2006 Normal
Symptoms vanish July 2006
Symptoms back Feb 2007
Brain Mri Normal
Bloodwork Normal

[tory2457]

I agree with Carol regarding your symptoms sounding like lyme disease.
Testing unfortunely isn't reliable. You need to become your own advocate and demand to be tested by a lab that tests for "all the bands". Lots to read and learn on the internet about the misdiagnosis of lyme and the co-infections that go along with it. canlyme is a great website filled with great info!
Clinical diagnosis is paramount in diagnosising lyme diesase...your body will tell you what's going on!

If this current doc is suggesting Fibro, and sending you to a Rhuemy?  Keep reading about lyme....and the Lyme/Fibro connection. Many many people who were told they have Fibro due to their "symptoms" are now getting better because they are treating the "cause" of their disease Lyme. The symptoms of Fibro are just that...symptoms, you need to find out the cause! and I'm gonna bet you'll get that answer reading about lyme. I did! I have MS... multiple scaring is the symptom, but I found lyme is the Cause!

Give yourself a fighting chance to in order to get your health back.

Good luck and best to you.

[Carol in PA]

Marline,
You said that the rheumatologist said "no fibro, no lupus, no lyme."
I think you should look further into Lyme Disease.

All the symptoms you listed can be caused by infection with Lyme bacteria, which invade the muscle and nerve cells.
If they invade the cranial nerves, you can get symptoms like eye pain, floaters, trigeminal neuralgia, ear problems and dizziness, difficulty with speech or swallowing, headaches, etc.

The Lyme bacteria live in the muscle and nerve cells, and use a lot of our magnesium to live and reproduce.
This can deplete the cells, and they don't have enough magnesium for all the enzyme processes.
This may result in twitching, tingling or other unusual sensations, like internal vibration.
Fatigue, headaches and migraines, and insomnia are common with Lyme.

Physicians usually order the ELISA test for Lyme, which has been shown to miss a majority of the KNOWN cases of Lyme.
Even the Western Blot IgG and IgM are not reliable, especially when run by a lab that does not test for or report all the "bands."
Because of the poor quality of the tests, the diagnosis is based on the patient's symptoms and history, which is known as a clinical diagnosis.

Most doctors are not willing to make a clinical diagnosis of Lyme, and just tell the patient that he doesn't have it, since the test was negative.

I'm not saying that you have Lyme Disease, I'm just trying to explain to you WHY you need to investigate deeper.

The Canadian Lyme Foundation has a lot of good information.
http://www.canlyme.com/patsymptoms.html

There are a number of support groups.
The flash discussion group at LymeNet.org is very helpful for newbies with questions about testing and diagnosis.

Wishing you the best,
Carol

[patsy10]

Did you read the post and responses about lyme on the doctor-pt neuro forum here?  Typical examples of lyme.

[patsy10]

I agree with Carol.  I've been getting the "I don't know" for almost 2 years.  My symptoms are similar to yours except for the itching.  I just started on antibiotics this week after seeing a doctor who specializes in lyme.  My testing was negative but I do have a history of bulllseye rashes.

[Jenny Wren]

I have everything except for the itching, and insomnia.  I posted to you on my post.