Kevin

I am a 29 year old, white male in Michigan, USA.

As many visitors here might experience, I have had an array of unusual neurological symptoms over the past 8 months.  I have seen several doctors and specialists (including second opinions) to include neurologists, infectious disease docs, etc.  I have had pretty much every test under the sun (HIV, MRIs, EMGs, EEGs, Sleep Studies, Western Blot, and the list goes on and on) and everything has come back normal except for 1 and I will go into that further down.

Ok, so let's get on to my symptoms.  At times I have this feeling of an inner tremor of sorts.  It is real hard to explain to someone who hasn't felt it but I would correlate it to having an extreme feeling of a caffeine buzz.  I actually feel my entire upper body tremor internally for a period of time and then as mysterious as it appears it just goes away.  There is really no set schedule on when it comes and goes other than at night which I will get to next paragraph.  It thus far comes and goes randomly but appears to be coming on more frequently as of recent.  The odd thing is that if my wife touches my arms or stomach or chest, etc., she cannot feel a tremor type sensation, I only feel it internally.

Having said that, at very minimal times will I actually notice a difficulty holding my hands stable if I try to hold them in a certain, unrelaxed position.  For example - if I try to hold the phone to my head at just the right angle, sometimes my hands will tremble trying to hold it, but at other times, no problem at all.  I only have the problem when I have the internal tremor but most of the time I have the inner tremor I still don’t have that problem.  I have no visible tremor at rest at any time really and the internal tremor is never local it is always the entire upper body and in the back of my head too.

My next symptom is that I occasionally have dizzy spells.  No real pattern to them sometimes that last a few hours sometimes a few minutes but they don't occur that frequently.

My last and most troublesome is that when I try to go to sleep and or first wake up (I guess you could call it a half sleep state) when I try to move my body I can move it but it is difficult because the part I'm trying to move will shake.  The best way I can describe is that it feels like my brain wants them to move but my body is still half asleep and therefore has a hard time moving.  Now, I do not have this problem at all once I am awake.  And also when I lay down to sleep (guaranteed at night) I get a little inner tremor and a feeling of my heart beating in my head and hands, like I can feel my pulse racing through my body but my heart rate isn’t really high.

Now in conclusion, the docs have ruled out most all conditions and I am only left with a few known possibilities (key word - known).  I have been told it could be Parkinson's but the docs don’t think so because they tell me my symptoms are not a typical onset of a PD patient and given my age it would be rare.  They tell me it could be MS, but they don’t think so because I have clean MRIs and other tests although it can occur with clean tests.  I have been told maybe lyme but my Western Blot was inconclusive.  And recently I have been told that heavy metal poisoning could account for these symptoms which brings me to my abnormal test result.

I had a complete blood and hair test workup for heavy metals among other things.  The my blood levels were all normal except for a CD54 lymphocyte appeared to be suppressed or something like that and my hair (pubic hair) tested high for arsenic.  The level in my hair was over 6 times the normal amount but my blood test comes back lower for arsenic.

As you can see I am in a complete state of confusion.  Can anyone shed some light or even ideas for me to check into on this situation?

Thanks for your time!

[Bethskii]

I am am 40 and have just started to have very similar symptoms to you. I noticed that your posting was from a year ago -- have you found anything out in this last year?

Beth

[bartleyk]

No answers yet! Everything is gone except for the sleep shakes, which i can control pretty good with sleep hygene practices and stress management.  No answers though.  If you want to chat more about it send me a private message.

Kevin

[KimR73]

I am 38 and have had the sleep tremors for some time time over the last 10 year period.  However, I contributed them to being on Celexa.  I started taking Celexa back in 2001 and just recently went off of it (like a month ago).  

I noticed that when I would forget to take it for a day or two, the tremors would start.  Once I'd taken it again regularly the tremors went away.  

But, when I experienced the tremors I only had them at night or when I woke up in the middle of the night or in the morning still being in a mid-sleep state, for a lack of better words.  

I thought the tremors were all but gone until this morning.  

I've been Celexa free for about 2 months now and I had a tremor this morning when I woke up with my alarm.  

Not sure what it's from but I'm thinking it's stress related.

I'm also mid-menstrual cycle right now and have cluster headaches with it.  So I'm not sure if it's related.  Allergies are horrible too...

[bbbcastle]

have you tried looking at Gluten (being allergic to it)?  Do you exercise regulary? Have you ever been on anit-depressants that could have caused this?  My husband is going through simular things but explains it more like an adrenaline rush, along with severe aniexty.  

[dafcjim]

i am looking into this as i am getting these feelings.  i shake or my whole bady twitches when trying to sleep at least 5 times every night.  i tend to lose feeling in my body which makes me shake and i get it back.  this has been well over a year.  I have had anxiety in the past but i dont want to instantly think its that again.