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Kevin

I am a 29 year old, white male in Michigan, USA.

As many visitors here might experience, I have had an array of unusual neurological symptoms over the past 8 months.  I have seen several doctors and specialists (including second opinions) to include neurologists, infectious disease docs, etc.  I have had pretty much every test under the sun (HIV, MRIs, EMGs, EEGs, Sleep Studies, Western Blot, and the list goes on and on) and everything has come back normal except for 1 and I will go into that further down.

Ok, so let's get on to my symptoms.  At times I have this feeling of an inner tremor of sorts.  It is real hard to explain to someone who hasn't felt it but I would correlate it to having an extreme feeling of a caffeine buzz.  I actually feel my entire upper body tremor internally for a period of time and then as mysterious as it appears it just goes away.  There is really no set schedule on when it comes and goes other than at night which I will get to next paragraph.  It thus far comes and goes randomly but appears to be coming on more frequently as of recent.  The odd thing is that if my wife touches my arms or stomach or chest, etc., she cannot feel a tremor type sensation, I only feel it internally.

Having said that, at very minimal times will I actually notice a difficulty holding my hands stable if I try to hold them in a certain, unrelaxed position.  For example - if I try to hold the phone to my head at just the right angle, sometimes my hands will tremble trying to hold it, but at other times, no problem at all.  I only have the problem when I have the internal tremor but most of the time I have the inner tremor I still don’t have that problem.  I have no visible tremor at rest at any time really and the internal tremor is never local it is always the entire upper body and in the back of my head too.

My next symptom is that I occasionally have dizzy spells.  No real pattern to them sometimes that last a few hours sometimes a few minutes but they don't occur that frequently.

My last and most troublesome is that when I try to go to sleep and or first wake up (I guess you could call it a half sleep state) when I try to move my body I can move it but it is difficult because the part I'm trying to move will shake.  The best way I can describe is that it feels like my brain wants them to move but my body is still half asleep and therefore has a hard time moving.  Now, I do not have this problem at all once I am awake.  And also when I lay down to sleep (guaranteed at night) I get a little inner tremor and a feeling of my heart beating in my head and hands, like I can feel my pulse racing through my body but my heart rate isn’t really high.

Now in conclusion, the docs have ruled out most all conditions and I am only left with a few known possibilities (key word - known).  I have been told it could be Parkinson's but the docs don’t think so because they tell me my symptoms are not a typical onset of a PD patient and given my age it would be rare.  They tell me it could be MS, but they don’t think so because I have clean MRIs and other tests although it can occur with clean tests.  I have been told maybe lyme but my Western Blot was inconclusive.  And recently I have been told that heavy metal poisoning could account for these symptoms which brings me to my abnormal test result.

I had a complete blood and hair test workup for heavy metals among other things.  The my blood levels were all normal except for a CD54 lymphocyte appeared to be suppressed or something like that and my hair (pubic hair) tested high for arsenic.  The level in my hair was over 6 times the normal amount but my blood test comes back lower for arsenic.

As you can see I am in a complete state of confusion.  Can anyone shed some light or even ideas for me to check into on this situation?

Thanks for your time!
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Avatar universal
I am 50 and just started with this symptom about 9 months ago.  I am thinking it has something to do with wireless/electromagnetic energy.  It started when we moved to a new house and all the wireless and cable routers were in the master BR under my side of the bed.  Furthermore, just outside the french doors in my BR that lead to the back porch is a bunch of telephone/power wires that run from the street to an alley way behind our house.  I live in Mobile, Al but ironically just went on a trip to upper Michigan and did not experience the symptoms at all - for just over a week.  I am back and now so is the symptoms.  I recently found out that in Huntsville - about 5 hours to the north of me, and Eglin AFB in Florida, which is about 2 hours to the southeast of me are huge fields that are sending signals into outer space trying to make contact or something like that.  These fields of equipment are massive and said to be putting out a ton of microwave signals.  Also, when we talk on cell phones, use high tech phones and IPADS, the signals actually go right through us. That just can't be good.  I just became aware of certain towns that are cellphone and wireless free because of this very thing.  I guess in W. Virginia. Just a thought.
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Avatar universal
I am 50 and just started with this symptom about 9 months ago.  I am thinking it has something to do with wireless/electromagnetic energy.  It started when we moved to a new house and all the wireless and cable routers were in the master BR under my side of the bed.  Furthermore, just outside the french doors in my BR that lead to the back porch is a bunch of telephone/power wires that run from the street to an alley way behind our house.  I live in Mobile, Al but ironically just went on a trip to upper Michigan and did not experience the symptoms at all - for just over a week.  I am back and now so is the symptoms.  I recently found out that in Huntsville - about 5 hours to the north of me, and Eglin AFB in Florida, which is about 2 hours to the southeast of me are huge fields that are sending signals into outer space trying to make contact or something like that.  These fields of equipment are massive and said to be putting out a ton of microwave signals.  Also, when we talk on cell phones, use high tech phones and IPADS, the signals actually go right through us. That just can't be good.  I just became aware of certain towns that are cellphone and wireless free because of this very thing.  I guess in W. Virginia. Just a thought.
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Avatar universal
Thank you for providing the results of your testing for inner tremors. You mentioned an elevated arsenic level and the possibility of heavy metals. Since Dr. Oz mentioned the danger of mercury poisoning in those of us with amalgum fillings, I've been taking 2000 mg of chlorella daily (which should eliminate mercury through the intestines). When I mentioned to my PCP that my inner tremors seem to coincide with my pulse rate, she ordered a 48 hour Holter Monitor. The result is that I have premature ventricular contractions and premature arterial contractions, both of which are common and don't warrant treatment at this time. It seems that I'll have to learn to live with my tremors. Here's wishing you improved health. 2concerned2013
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Avatar universal
I am a 56yo female. I, too, have tremors at night when I am in a twilight sleep (partially awake), especially toward the morning.  A neurologist refused to do any testing because my hands are rock steady during the day. This started about 2 years ago, close to the time I was diagnosed with sleep apnea. I use a c-pap machine to sleep so the apnea seems to be controlled....I don't know if the two are related.  I had a second sleep study with all of the electrodes glued to my head, specifically to see if it would show anything related to my tremors. Even though i woke in the morning with my head and arms vibrating, it did not show up in their reading. Like some of the other folks, I had been taking antidepressants for years when this started (Effexor). I went off of it a year ago but nothing changed. I am much worse if I take a calcium supplement. I am better if I take magnesium at night before going to be. I now also take a low dose of lorazepam (ativan) in addition to the magnesium before bed and they both seem to help. Most nights now I don't have the tremors, but they still return in spells. If I don't take the magnesium, I will DEFINATELY have them. If I take calcium, I will DEFINATELY have them. Every doctor just shrugs as if it is nothing and say they have never heard of it. It really will ruin my sleep any night I have them.  Hope some of us can put the pieces of this puzzle together.  I can be reached at ***@**** for anyone who has this problem and wants to discuss it.  Julie
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Avatar universal
i am looking into this as i am getting these feelings.  i shake or my whole bady twitches when trying to sleep at least 5 times every night.  i tend to lose feeling in my body which makes me shake and i get it back.  this has been well over a year.  I have had anxiety in the past but i dont want to instantly think its that again.  
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Avatar universal
have you tried looking at Gluten (being allergic to it)?  Do you exercise regulary? Have you ever been on anit-depressants that could have caused this?  My husband is going through simular things but explains it more like an adrenaline rush, along with severe aniexty.  
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Avatar universal
I am 38 and have had the sleep tremors for some time time over the last 10 year period.  However, I contributed them to being on Celexa.  I started taking Celexa back in 2001 and just recently went off of it (like a month ago).  

I noticed that when I would forget to take it for a day or two, the tremors would start.  Once I'd taken it again regularly the tremors went away.  

But, when I experienced the tremors I only had them at night or when I woke up in the middle of the night or in the morning still being in a mid-sleep state, for a lack of better words.  

I thought the tremors were all but gone until this morning.  

I've been Celexa free for about 2 months now and I had a tremor this morning when I woke up with my alarm.  

Not sure what it's from but I'm thinking it's stress related.

I'm also mid-menstrual cycle right now and have cluster headaches with it.  So I'm not sure if it's related.  Allergies are horrible too...
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Avatar universal
No answers yet! Everything is gone except for the sleep shakes, which i can control pretty good with sleep hygene practices and stress management.  No answers though.  If you want to chat more about it send me a private message.

Kevin
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Avatar universal
I am am 40 and have just started to have very similar symptoms to you. I noticed that your posting was from a year ago -- have you found anything out in this last year?

Beth
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