I have been undiagnosed with health problems for 6 years and I'm hoping to find anyone willing to help or offer advice. My health started deteriorating suddenly, without warning and ever since I've continued to have what I call "episodes" that occur daily. Sometimes I can deal with them but mostly I need help doing normal things such as bathing, cooking, cleaning, etc. I've seen 8 doctors who have no idea what's going on and I'm so far in debt that I can't afford to see another one.
My symptoms include:
leg weakness/numbness/tingling/cramps (most recent)
dizziness, not vertigo
lightheadedness on occassion
headaches that can last for weeks or up to 2 months
burning or stinging pains in legs and arms
head fullness, or pressure
sinus tachycardia, which hasn't been figured out yet but so far, no known cause
fatigue
intolerance to heat
can't walk or stand for more than 5-10 minutes at a time
buzzing sensations in the head
nausea, which can happen with or without dizziness
All of these occur daily, except for the headaches which happen every few months, and leg weakness which happens about 5 times a year and last about a week. Tachycardia happens mostly when I stand up but does occur while I'm lying down as well.
Sometimes I feel these "episodes" mimic a sugar problem because I get the shakes and feel clammy but I've had numerous tests to rule this out. These episodes can occur at any time as well and can last for days.
This has taken over my life as I am forced to be bedridden 90% of the time. I've missed out on normal things like working, having a family, and missed several weddings and family funerals. I only drive a few times a year and I can't do my own shopping. I've had so many bad episodes while shopping that it causes severe anxiety when I go in there now. Sometimes I can control it, until the dizziness kicks in. Then I have to run out to the car.
I was scanned for MS in 2005 and it was negative. Also Lupus, Lyme, ANA, smooth muscle, tilt table, stress echo, 2 regular echos, holter monitor, event monitor, CT of head....all normal. My potassium has been low by no more than 2 points on 3 occassions. Liver and kidney tests were normal. I was also tested for vertigo tons of times and I don't have that either. They ruled out fibormyalgia, chronic fatigue syndrome, and P.O.T.S.
I'm 29, very light smoker, don't drink. The only meds I take are birth control and dramamine. I feel I'm very sensitive to meds now and get weird side affects from everything buy tylenol. I stopped my birth control for a while to see if it would help and nothing changed. I didn't start the dramamine until 2 years ago so it's not causing this. I've never done any drugs, never been around any toxic chemicals, never traveled overseas. Any suggestions would be helpful!