Lennox-Gastaut Syndrome

Posted By Fred Roedl on May 18, 1997 at 11:27:34:









My 23 year old son has a mixed seizure disorder that we
have been unable to control all of his life.  He began
having petit mal seizures when he was 9 months old after
a normal pregnancy and infant development. His first
grand mal seizure was on his first birthday, 12 hours
after his MMR immunization.  This seizure lasted approx.
15 minutes. Since that time (22 years) he has frequent,
uncontolled grand mal and myoclonic seizures. Currently,
he has some form of seizure activity every day.  
He is developmentally disabled, with a functioning
mental capacity of age 3-4.
He has been on numerous combinations of all FDA
approved seizure medications since his seizures began.
We have had no success in controlling these seizures.
The myoclnic episodes are becoming more frequent(daily)
and are severely limiting his quality of life. We have
recently been told by doctors that our son suffers from
Lennox-Gestault Syndrome. This is a new diagnosis for
us, after having our son evaluated by many different
neurologists. I realize you will not be able to comment
with absolute certainly, but does this diagnosis sound
accurate. If so, what are possible treatments for
Lennox-Gastault that will improve my son's seizure
control.
Thank you and I look forward to your reply, as we are
desperate for help.