Looking for others with spinal tumor

Am looking for anyone to talk with about spinal tumor and spina bifida occulta. Would love to communicate with anyone with similar problems.

[Cam198]

Hi, I just recently started on this website I have spina bifida occulta I do have a fat tumor protecting the cord on my lower back. Feel free to contact me if you wish too

[evo123]

Hi, my daughter has spina bifida occulta with tethered cord syndrome.  She had surgery to release her spinal cord in january this year, she is doing great.  She is 1 and has just started to walk :)

Many doctors she was seen by dismissed the dimple into her spine as 'nothing much' - an MRI scan ordered by the fantastic neurosurgeon Neil Buxton at Alder Hey childrens Hospital revealed otherwise.  This condition could have effected her legs , feet or bowels/bladder if it remained undiagnosed.

[selmaS]

Hi I also have tethered cord, and chiari malformation.
I have a cyst where my dimple is......is it possible ur tumor is a syrinx?

We do discuss these topics on the chiari forum here on MedHelp.

"selma"

[qvu10]

Hi, I am 33 year old and I also have Spina bifida occulta with fat tumor. I had operation to release fat tumor in last August. I would like to contact with someone have the same problem.

[tbhbo]

Hello I am a 32 years old & though I have never be seen by a doctor I believe I have a form of spina bifida, I have a fatty/lump right below the small of my back, I would like information on your surgery, I have lived with this my whole life.

[sugarsrevnge]

hi there.... i had a spinal cord tumor removed in march of this year. i am still in "recovery" but most of the time i feel like i am just getting worst. i am hoping that i just need to find that one thing that works and gets me better. hoping to get back to normal someday. feel free to contact me if you wannna chat.