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Looking for others with spinal tumor

by BDolbier, Apr 28, 2009 12:36PM
Am looking for anyone to talk with about spinal tumor and spina bifida occulta. Would love to communicate with anyone with similar problems.
Member Comments (3)

by Cam198, Jul 27, 2009 04:09PM
To: BDolbier
Hi, I just recently started on this website I have spina bifida occulta I do have a fat tumor protecting the cord on my lower back. Feel free to contact me if you wish too

by evo123, Jul 27, 2009 06:33PM
To: BDolbier
Hi, my daughter has spina bifida occulta with tethered cord syndrome.  She had surgery to release her spinal cord in january this year, she is doing great.  She is 1 and has just started to walk :)

Many doctors she was seen by dismissed the dimple into her spine as 'nothing much' - an MRI scan ordered by the fantastic neurosurgeon Neil Buxton at Alder Hey childrens Hospital revealed otherwise.  This condition could have effected her legs , feet or bowels/bladder if it remained undiagnosed.



by selmaS, Jul 27, 2009 07:49PM
Hi I also have tethered cord, and chiari malformation.
I have a cyst where my dimple is......is it possible ur tumor is a syrinx?

We do discuss these topics on the chiari forum here on MedHelp.

"selma"
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