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Low B12 and balance issues

by sjgallo, Aug 19, 2009 10:10PM
I was diagnosed three years ago with low serum B12 levels (around 90 or so). My doctor at the time told me that I did not have pernicious anemia because my level wasn't low enough for that. Before my diagnosis, I had physical, as well as mental symptoms: numbness and tingling in my hands and feet, poor memory, fatigue, and very poor balance, particularly in the dark. She prescribed once-monthly shots, which I took for a year.

I switched doctors, and that one told me that my level was very low, but it couldn't be pernicious anemia because "people in their twenties don't get pernicious anemia." He prescribed b12 pills, 1000 mcg per day. My last blood test, my level was 187.

I eat meat, I've never had gastric bypass surgery, and I don't have worms. I have a rich family history of autoimmune disorders, including my great-aunts who developed pernicious anemia in their twenties. So, I've gone ahead and decided that I do, in fact, have pernicious anemia.

I don't believe the pills are working at all. I am still very fatigued, I still feel "foggy" quite frequently, and my balance hasn't gotten any better. While taking a physical for a job, the doctor (not my usual), noted my poor balance, and mentioned that it is likely because of my low B12. He said that, at this point it probably won't get better, but as long as I'm being treated, it won't get worse.

I'm going to yet another new doctor to try and get this resolved. What do I need to say/do to get some help with this? Is the doctor who gave me the physical correct, will I have terrible balance for the rest of my life? Will I feel like this for the rest of my life?

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