Aa
Many neuro problems
This all started back in December 04, almost two months after a disectomy back surgery. I had been getting along just fine when all of a sudden I started feeling back pains as if my disc was once again pressing into my spinal cord. This continued on however the pain was different. I was getting burning in my feet and thigh muscles along with sharp nerve pains. My upper thigh muscles also pulled very tight making it hard to walk. I also started experiencing weakness in my leg muscles around this time. I had a MRI of my lumbar back in middle December and it showed just a small bulge in the middle of the disc. My doctor said it wasn
A related discussion, Regarding neuro problem was started.
A related discussion, transient sever throbing headache was started.
Mr_O:
I agree with the doctor suggestions. I would make a list of all the medications that you have taken up to one year prior to the onset of your symptoms. There are many drugs that cause exactly the same symptoms that you have.
For instance, the quinolone antibiotics cause in some people (and in everyone for large doses) absolutely all the symptoms that you relate.
If you had taken such a medicine in the past, you might consider having a look at:
www.fluoroquinolones.org
www.fqresearch.org
and browse through the symptoms.
The bad news is that some of the most debilitating neurological and joint lesions caused by this antibiotics are in some cases irreversible, as the new edition of the package inserts states clearly.
I agree with the doctor suggestions. I would make a list of all the medications that you have taken up to one year prior to the onset of your symptoms. There are many drugs that cause exactly the same symptoms that you have.
For instance, the quinolone antibiotics cause in some people (and in everyone for large doses) absolutely all the symptoms that you relate.
If you had taken such a medicine in the past, you might consider having a look at:
www.fluoroquinolones.org
www.fqresearch.org
and browse through the symptoms.
The bad news is that some of the most debilitating neurological and joint lesions caused by this antibiotics are in some cases irreversible, as the new edition of the package inserts states clearly.
Thank you Nikki!
I found out last night what is causing my issues. It is not MS, ALS, or Parkinson's as I feared. It happens to be the one thing that never occurred to me for some reason.
The MRI found a spot about the size of a quarter on the medulla oblongata. I am going to see a neurologist tomorrow afternoon, and then I will probably be looking for a neurosurgeon.
It's not possible to tell what this spot is yet. I can't even speculate at this point, but I know the noticable symptoms started last Tuesday 11/8. Hopefully the neurologist will be able to tell me more tomorrow.
My thoughts and prayers are with all of you who also suffer.
Jim
I found out last night what is causing my issues. It is not MS, ALS, or Parkinson's as I feared. It happens to be the one thing that never occurred to me for some reason.
The MRI found a spot about the size of a quarter on the medulla oblongata. I am going to see a neurologist tomorrow afternoon, and then I will probably be looking for a neurosurgeon.
It's not possible to tell what this spot is yet. I can't even speculate at this point, but I know the noticable symptoms started last Tuesday 11/8. Hopefully the neurologist will be able to tell me more tomorrow.
My thoughts and prayers are with all of you who also suffer.
Jim
I have had an aunt that was like the first woman diagnosed with ALS. I have also had 3 aunts on my fathers side with MS. I have alot of weird things going on with me. I know what its like to worry, and break down like you have done. I also know that science has come a long way. Hang in there, we will be praying.
Nikki16
Nikki16
I just recently, as in last Tuesday started to have some very strange things happen to me.
Tuesday night my arms started to feel weak exactly like if I had done some bicep curls.
Wednesday my arms still felt weak, so I made a Dr.'s appointment.
Thursday, arms are still weak, Dr. says it's probably muscle fatigue.
Friday, leave work by 11:30am, wife has to pick me up because I have a migraine so bad that I cannot see straight.
Saturday, still have the headache, a lot of pressure, reduced peripheral vision, etc... and my hands are weak and clumsy.
Sunday, still have the headache, etc... hands are still clumsy.
Monday, go to Dr. again, am scheduled for an MRI this afternoon, and appointment with Neurologist on Thursday.
This is all very scary. I have had migraines before, but never had any of this clumsiness in my hands. It took two tries each to tie my shoes this morning. It's like my hands don't work fast enough. I am reading on the Internet about all of these terrible things that I probably have. ALS, MS, Parkinson's, etc... I am 31 and up until last Tuesday I felt great. I have a wife, and two very little girls, and I really scared. Sunday my wife and daughters went to the in-laws house and I just broke down and cried for an hour after reading about ALS and MS.
I don't have a history of ALS, MS, or Parkinson's in my family on any side. My father has been extremely unhealthy, but had never had any neurological problems. I am just praying at this point that I have a pinched nerve, or even if I have RSI or carpal tunnel I would consider myself lucky.
Tuesday night my arms started to feel weak exactly like if I had done some bicep curls.
Wednesday my arms still felt weak, so I made a Dr.'s appointment.
Thursday, arms are still weak, Dr. says it's probably muscle fatigue.
Friday, leave work by 11:30am, wife has to pick me up because I have a migraine so bad that I cannot see straight.
Saturday, still have the headache, a lot of pressure, reduced peripheral vision, etc... and my hands are weak and clumsy.
Sunday, still have the headache, etc... hands are still clumsy.
Monday, go to Dr. again, am scheduled for an MRI this afternoon, and appointment with Neurologist on Thursday.
This is all very scary. I have had migraines before, but never had any of this clumsiness in my hands. It took two tries each to tie my shoes this morning. It's like my hands don't work fast enough. I am reading on the Internet about all of these terrible things that I probably have. ALS, MS, Parkinson's, etc... I am 31 and up until last Tuesday I felt great. I have a wife, and two very little girls, and I really scared. Sunday my wife and daughters went to the in-laws house and I just broke down and cried for an hour after reading about ALS and MS.
I don't have a history of ALS, MS, or Parkinson's in my family on any side. My father has been extremely unhealthy, but had never had any neurological problems. I am just praying at this point that I have a pinched nerve, or even if I have RSI or carpal tunnel I would consider myself lucky.
The relatively normal MRIs suggest that a lot of the postop pain may be from muscle spasm and muscle/ligament problems rather than disc or spinal cord pain. Unfortunately surgery does not help this pain.
Sometimes, postop weakness and swallowing difficulties can be from an immune attack on the nerve called guillan barre syndrome, this usually resolves after 2-3 months though
Another possibility is stiff person syndrome - usually manifested by spasms of the trunk muscles, this can be tested for by antibody tests, spinal fluid analysis and by a good neuromuscular assessment.
The effect of any medications and any alcohol you take on a chronic basis needs to be looked into carefully too to evaluate for side effects. Although it does not sound liek Lyme, there are come rare metabolic muscle disease that can result in muscles pain after exercise, blood tests such as CK or a muscle biopsy are sometimes use ful test.
Sometimes, postop weakness and swallowing difficulties can be from an immune attack on the nerve called guillan barre syndrome, this usually resolves after 2-3 months though
Another possibility is stiff person syndrome - usually manifested by spasms of the trunk muscles, this can be tested for by antibody tests, spinal fluid analysis and by a good neuromuscular assessment.
The effect of any medications and any alcohol you take on a chronic basis needs to be looked into carefully too to evaluate for side effects. Although it does not sound liek Lyme, there are come rare metabolic muscle disease that can result in muscles pain after exercise, blood tests such as CK or a muscle biopsy are sometimes use ful test.
My first thought was that you had this underlying and when you had the surgery, the stress on your body was too much and this has now come to the surface. I agree with your concern of Lyme. Lyme is spread by other means than just ticks. No matter the bacteria causing this, it needs to be cleared. Please consult a Lyme doc and treat for that. It won't hurt. Samento is great for lyme as well. You're not imagining it and don't let anyone tell you that you are. Keep looking and treating til you clear this.
Hi. Your symptoms sound similar to how mine started especially the cracking in the joints. No one at all has taken that part seriously - I literally feel like a stick man. I have had simply loads of tests. I think you should have an autonomic neuropathy test - very time consuming but necessary. Mine came back clear but I do have a diagnosis of painful sensory neuropathy. I have to say that over a period of 4 years it has got slightly better but I sometimes think that you just get used to it. I am on a cocktail of medications both for pain and one that dampens down the nerves which have at least let me sleep better. By the way how old are you? I am 46 which seems way to young to have this amount of disabilty.
Good luck
Good luck
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