Neurology Community
Mitochondrial disease??
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Mitochondrial disease??

After 12 months of testing, my 9 year old son has been diagnosed with a mitochondrial disease....possibly Leigh's Syndrome.. After a lot of research, I have discovered that Leigh's syndrome is diagnosed primarily when in infancy and the prognosis is poor and is usually during the first few years of life. . Initially his eyes where the major symptom, along with hypertentsities of the mid brain and brain stem. He has since had chronic and severe vomiting, as well as bowel blockages which require weekly bowel wash outs. He cannot hold or gain weight so is also having enteral nutritional feeds via naso gastric tube, nightly. Could someone please advise
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
338416_tn?1420049302
Blank
jensequitur
Fort Worth, TX
620923_tn?1436154699
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
293157_tn?1285877039
Blank
Wobbly
11119474_tn?1428705770
Blank
davincidanes
Rockwood, TN
209987_tn?1418913008
Blank
tschock
AB