Aa
A
A
Close
Avatar_universal
Mononeuritis Multiplex
18 months ago I developed a sudden, constant burning pain in the thumb and index finger of my left hand. The pain was absolutely unbearable with no relief at all from medications. Two months later I developed the same pain in my left hand but on the top of the hand and fingers.

Two months after that it started in my right hand and also caused damage to the motor nerves as well as the sensory. A month or so after that it attacked one of the other nerves in my right arm, At that point the doctors told me I had very severe damage to my radial and median nerves in both my arms.

I also have nerve damage in my legs and torso. My walking has been badly affected. Especially since my right foot is mostly numb. I now use a rollator to move around.

My neurologist doesn't know is causing this. He suspects that it is some sort of vasculitis, probably polyarteritis nodosa. They tried me on steroids but it was a disaster and we had to stop.

My EMGs and nerve conductions have all been abnormal. I am scheduled for muscle and nerve biopsies in January.

Does anyone have any advice for me ? Especially the doctors. My quality of life has really diminished. My symptoms are still progressing. I'm afraid of losing even more function than I have now.

One other thing that should be mentioned is that I have moderate mixed cerebral palsy. (spastic / ataxic). The neurologist says that the two conditions are unrelated, I'm not so sure.

Thanks to everyone for their help.

Vanessa
Cancel
1 Answers
Page 1 of 1
Avatar_universal
Should also mention that I have mottled red rashes on my hands and feet. Sometimes on my legs and stomach as well.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Mononeuritis Multiplex
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
338416_tn?1420049302
Blank
Fort Worth, TX
144586_tn?1284669764
Blank
562511_tn?1285907760
Blank
CA
Avatar_universal
Blank
1780921_tn?1416842066
Blank
Chandler, AZ