Maybe I described it wrong like my arms or legs do not move I just see my muscles jumping but my arm or leg do not physically move I have full control over body movement its just I can see my skin jumping so presume its a muscle doing that. Its scary anyone experience that.
I also get muscle twitches and jumping in my arms and legs. I was told it was a combination of Restless Legs Syndrome and Periodic Limb Movement Syndrome. I have had to be very careful when holding things because my arm (especially the left, non-dominant one) will swing out on its own regardless of what I am holding at the time. I have learned NOT to hold the popcorn in the movie theater :-) Seriously, I think it is more than the RLS or the PLMS because things like "the cold" wll set off the spasms in my legs (as when I am swimming). Also my index finger will pull forward down past my thumb (very painful) and/or my
2nd or 3rd toes will pull down and to the side away from the big toe in a tight spasm (extremely painful) and I actually need my husband's help to massage the area, usually by pulling th diget back in the opposite direction that it is spasming... until it releases. I don't know what it is... but I do know a little of what you are experiencing.
It sounds like BFS to me. I have these for about 5 years, primarily in my calves. Somedays are worse than others. Somedays I can actually see my calve muscles move. Sometimes it is a slight vibration & it can't be seen. Once in a while it will happen in another part of my body. I have just learned to live with it. It doesn't bother me much anymore. But I agree, high anxiety & sleep deprivation (which was my problem) doesn't help the syndrome.
Good Luck.
Shamrock
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