Muscle aches

Posted By Daniel Iburg on February 23, 1999 at 12:26:35:







I am a 39 year old active male.I had a stomach virus 7 months ago.Since then i have been in the hospital 5 times.I have had nemerous tests.My Ck level has been from 250 to 500.I have had an Emg neg results.I have had evey gastro test,all neg(they did remove my gallbladder).I have a constant ache in my left ankle,neg findings in the othro.Blood tests for everything.Cbc diff,ana,ua,pt/ptt/rpr/esr/rf/HepABC all neg.Hep antibodies all neg.Motor neuropathy all fine.They did fin elevated copper in my muscle.A liver biopsy _ for wilsons same with copper blood tests.I do have a swollen salivary gland.Doctors say take vitimans.Epstein barr was elevated.On the muscle biopsy25% atrophoic fibers on esterase stain.Sed rate normal,lymph normal.Believe me this is not in my head,the doctors say something is wrong but they can't grasp it.Any ideas thyroid tests also normal.The gland doctor said check for a connective disorder? Would that cause this muscle burning.The best way to describe it is the burn you feel when you work out.Does a muscle biopsy rule out MS and Sle?what do you suggest.
Thank you for you Time and effort
Dan Iburg
I just want to get back to being the dad my kids love.