NEUROLOGY COMMUNITY
My Story So Far Arghhh!!!!

My Story So Far Arghhh!!!!

My first symptom was back last summer when i was feeling faint and my feet felt like sponge.. had to pull the car over as everything was a blur..
December 07 i was rushed to hospital with kidney infection when they found i was retaining urine..
Had cystoscopy and checked for kidney stones etc..but found nothing.
This has got worse since and i cath 5-6 times a day as i canot pass at all..
Had urodynamics testing and was told i had neurogenic bladder.
I have had kidney infection after infection and had about 6 referals to hospital last year ..
Since then i have sufferd spasms,cramp and numbness in neck,fingers and arms,
Heat seems to trigger symptoms..i had a hot bath and i started to vomit .
My urologist then reffered me to the neuro as he suspected MS
Had lots of tests .. reflex ,pin *****, etc..
Neuro said i had Babinski response to the plantar reflex and less feeling in toes and fingers than i thought.
He then sent me for MRI which came back ok so now i am waiting on LP
Since all this i have got worse..
Spacticity in right leg to the pint my foot was turned in and shaking .. it was that tight it felt like it was going to snap.
My recent attack is i have a numb leg from the knee down and footdrop  and use a wheelchair to help me around above my knee is burning and buzzing and cramps that take my breath away.. also twitching in my bottom.
I am taking baclofen ,deazepam, amitriptyline and tramodol  for all my symptoms and i am having a LP next week and having brace fitted to leg/foot.
This sound familiar to many of you? I want to know whats wrong with me still no answers..

Thanks all for listening..

Rachy xx

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