My daughter is 31/2 years old and these days she's been having sudden involuntary movements of the legs and she falls down..these episodes last for a few seconds but continue for 10-15 mins.After doing some research we think she has Paroxysmal Kinesegenic Dyskinesia...been to a neurologist and he feels the same...but hasn't put her on any medication yet.What is the prognosis for this disease?I am soo worried.Also are there any specialists for this disease in the US.I can't seem to find any doctor who specializes in this field.
Please help with any info possible.
My 7yr old daughter has been recently diagnosed with Paroxysmal Dyskinesia and her symptoms seem to been getting progressively worse. We visited Dr. Jonathan Mink in Rochester, Ny and he was wonderful. He is one of the few doctors out there that specializes in this disorder. Unfortunately doesn't seem like there is much they can do and she just has to live with all these abnormal muscle spasms and lose of muscle control. I have been trying to find support groups or any other information possible--
Please let me know if you know of anything that has been helpful for your daughter.
Dr. Hyder Jinnah, Atlanta, Georgia.
As for prognosis from personal experience (although I had an onset of PKD during puberty, age 9, and for me it may only last until I finish my growth cycle, I'm 24 now) my episodes became more frequent until age 10 when I began taking an anticonvulsant agent, Dilantin now as long as I stay on my prescription, I do not have episodes (however they only last for around 5-45 secs and occur when I am in a prone position for a bit and the quickly move). I hope you are able to get treatment for you daughter
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.