Neurology Community
My daughter might have Paroxysmal Dyskinesia
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, Multiple Sclerosis, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

My daughter might have Paroxysmal Dyskinesia

My daughter is 31/2 years old and these days she's been having sudden involuntary movements of the legs and she falls down..these episodes last for a few seconds but continue for 10-15 mins.After doing some research we think she has Paroxysmal Kinesegenic Dyskinesia...been to a neurologist and he feels the same...but hasn't put her on any medication yet.What is the prognosis for this disease?I am soo worried.Also are there any specialists for this disease in the US.I can't seem to find any doctor who specializes in this field.
Please help with any info possible.

Thanks
Pati
Related Discussions
3 Comments Post a Comment
Blank
Avatar f tn
My 7yr old daughter has been recently diagnosed with Paroxysmal Dyskinesia and her symptoms seem to been getting progressively worse. We visited Dr. Jonathan Mink in Rochester, Ny and he was wonderful. He is one of the few doctors out there that specializes in this disorder. Unfortunately doesn't seem like there is much they can do and she just has to live with all these abnormal muscle spasms and lose of muscle control. I have been trying to find support groups or any other information possible--
Please let me know if you know of anything that has been helpful for your daughter.
Thanks-
KOhio
Blank
Avatar m tn
Dr. Hyder Jinnah, Atlanta, Georgia.
As for prognosis from personal experience (although I had an onset of PKD during puberty, age 9, and for me it may only last until I finish my growth cycle, I'm 24 now) my episodes became more frequent until age 10 when I began taking an anticonvulsant agent, Dilantin now as long as I stay on my prescription, I do not have episodes (however they only last for around 5-45 secs and occur when I am in a prone position for a bit and the quickly move). I hope you are able to get treatment for you daughter
Blank
Avatar m tn
Hello there, I know it has been a while since you posted this, but my 21/2 year old has just been given a proabable diagnosis of this.  I am wondering how your daughter is doing now??
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
5265383 tn?1465260698
Blank
aspen2
ON
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
209987 tn?1451939065
Blank
tschock
AB
1780921 tn?1462244109
Blank
flipper336
Queen Creek, AZ