Neurology Community
My daughter might have Paroxysmal Dyskinesia
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

My daughter might have Paroxysmal Dyskinesia

My daughter is 31/2 years old and these days she's been having sudden involuntary movements of the legs and she falls down..these episodes last for a few seconds but continue for 10-15 mins.After doing some research we think she has Paroxysmal Kinesegenic Dyskinesia...been to a neurologist and he feels the same...but hasn't put her on any medication yet.What is the prognosis for this disease?I am soo worried.Also are there any specialists for this disease in the US.I can't seem to find any doctor who specializes in this field.
Please help with any info possible.

Thanks
Pati
Related Discussions
3 Comments Post a Comment
Blank
Avatar_f_tn
My 7yr old daughter has been recently diagnosed with Paroxysmal Dyskinesia and her symptoms seem to been getting progressively worse. We visited Dr. Jonathan Mink in Rochester, Ny and he was wonderful. He is one of the few doctors out there that specializes in this disorder. Unfortunately doesn't seem like there is much they can do and she just has to live with all these abnormal muscle spasms and lose of muscle control. I have been trying to find support groups or any other information possible--
Please let me know if you know of anything that has been helpful for your daughter.
Thanks-
KOhio
Blank
Avatar_m_tn
Dr. Hyder Jinnah, Atlanta, Georgia.
As for prognosis from personal experience (although I had an onset of PKD during puberty, age 9, and for me it may only last until I finish my growth cycle, I'm 24 now) my episodes became more frequent until age 10 when I began taking an anticonvulsant agent, Dilantin now as long as I stay on my prescription, I do not have episodes (however they only last for around 5-45 secs and occur when I am in a prone position for a bit and the quickly move). I hope you are able to get treatment for you daughter
Blank
Avatar_m_tn
Hello there, I know it has been a while since you posted this, but my 21/2 year old has just been given a proabable diagnosis of this.  I am wondering how your daughter is doing now??
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
338416_tn?1260996698
Blank
jensequitur
Fort Worth, TX
620923_tn?1405964489
Blank
selmaS
Allentown, PA
10389859_tn?1409925468
Blank
Foggy2
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
352007_tn?1372861481
Blank
LisaJF
900662_tn?1380159390
Blank
johnniebear
chicago area, IL