Myasthenia Gravis Remission

    
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Posted by CCF MD GS on March 03, 1998 at 09:39:31:

In Reply to: Myasthenia Gravis Remission posted by Danielle on February 27, 1998 at 11:34:39:

: I have had MG since I was 19 (I am 30) - the last 3 years I have had very mild symptoms but I have noticed that I am having symptoms come back at me like they started just as hard.  In the last week I have gone from taking Mestinon as needed (some days none at all) to having to take 120mg every 4 hours and a timespan 180mg at night before bed.  I am noticing it in my hands more now it originally started in my eyes 11 yrs ago and usually I used to notice it in my eyes first - I do not know if that is merely because I spend more of my time typing now.  I had a thymectomy right after I was diagnosed.  I am getting very clumsy again and am concerned at the drastic difference over the last week.  I am in otherwise good health, no over load on stress, no cold, I am on Depo for birthcontrol and do not experience a menstral flow any longer.  I am just concerned that it has hit me so much harder recently after such a long lag time with minor symptoms appearing occassionally, especially without any of the above in my life right now.  I have also had two healthy children without any complications (natural child birth)within the last 6 years.  I have always been on Mestinon - just adjusting the dosage as needed. Is there a remission with this disease and can it come back harder then it started?

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Danielle I would recommend an evaluation by your neurologist at this time. Taking too much mestinon can cause the same symptoms as too little and it may be that you arehaving symptoms related to your medication. Patients with MG can have fluctuating symptoms that can be caused by many things including medications and other medical conditions. The best thing to do, however, is to see your doctor who can work this out for you - everything else will just be speculation.