Neurology Community
NCS Diagnosis - I'm stuck, where to go from here?
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, Multiple Sclerosis, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

NCS Diagnosis - I'm stuck, where to go from here?

Hello,
I was diagnosed with Neurocardiogenic Syncope a few months ago after a tilt table test.  My Cardiologist is doing his best to treat me but I think I need more testing and treatment.  After trying a beta-blocker which didn't work out because I could not tolerate the side effects, I have been trying Midodrine and it seems to be helping a bit.  I also take a salt tablet daily to help raise my low blood pressure.  I have too many symptoms to list...the classic ones of course are present - the pre-syncope symptoms seems to always be lurking in the background.  Lightheadeness, dizziness, etc.

It is the other symptoms that worry me.  I seem to be getting stuck when I try to speak.  It's all in my head but when I try to get it out, it takes a few seconds to actually get it out.  I have had CFS symptoms forever.  No energy, heat intolerance...generally weak and no stamina.

I am really stuck about where to go from here for treatment?  I thought I found a full Autonomic testing lab, but it turns out they don't see NCS patients any more.  I'm wondering if a general Neurologist is going to be able to help me.  I'm wondering why, if this condition seems to be well known, why it's so hard to get help and get to the bottom of what else is really going on.  I just want to find a treatment and feel better.  I work full time and don't really know how I do it.  My husband and I work at the same office and without him driving, I would never make it thru the week.  I acutually am only going to make it three days this week.

Any help in pointing me in the right direction would be very much appreciated!  Thanks in advance.
Stephanie
Tags: NCS
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
5265383 tn?1465260698
Blank
aspen2
ON
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
209987 tn?1451939065
Blank
tschock
AB
1780921 tn?1462244109
Blank
flipper336
Queen Creek, AZ