NEUROLOGY

I HAVE BEEN DIAGNOSED WITH DEGNERATIVE CEREBELLUM ATAXIA W/NYSTAGMUS. DOES ANYONE OUT THERE HAVE THE SAME THING? CANNOT FIND ANYONE.

[AMO]

hi lee,

i   am sorry  you have been dx'd with cerebell um atrophy.
WEre your doctor able to give a type?

I have dx of cerebellar ataxia , somev  time ago i had signs on a mri that says multiple system atrophy.
Have you  researched on line?
While this is rare, there is some goood information.
take car e, amo

There aree a couple support      groups.

OPCA Awarenss (and a link to suport forum)
The National Ataxia FOundation
It has beene  slow latley, but alot oof

[LEE51]

i have done so much research on cerebellum degnerative ataxia. at first they thought i had cpm whcih is central pontine myelinolysis. i have had 4 diagnois and 2 day i have cda and 2 day i have cpm. it is progressing negatively, havig lost the abiliy to read because of the nystagmus which is inherent with both. thank you for your informative e maill and i will look up the opca awareness. i already have linked up with the national ataxia foundation.  lee51

[ampky]

I had a stroke that involved the cerebellum and had ataxia from it.  One of the best things you can do is try to keep your core and leg muscles strong.

I wish you the best!

[LEE51]

I HAVE BEEN TRYING TO KEEP MUSCLES STRONG BY GOING TO REHAP FOR 9 YEARS BUT NOW IT SEEMS TO BE PROGRESSING. HAD A FALL LAST NITE AND HAD A LOT OF TROUBLE GETTING UP DUE TO BEING OVERWEIGHT.