NF and cerebral vascular abnormalities??

Posted By ruth on October 05, 1998 at 00:29:04:







Our daughter has NF-1 and is being evaluated for very frequent headaches. Her brain MRI is normal. We have read that there can be cerebral vascular abnormalities associated with NF-1.  We are trying to get some more info on this. She will be seeing the doc again soon.  Most of her doctors here are quite unfamiliar with NF-1 and we have had to "provide" a lot of info in the past in our experience with her health care concerning her NF.  Any info you have on this would be appreciated-- ie- tests ect?? would a MR angiogram to look at the cerebral arteries be a good test to have done ?  Thanks so much for your time!!