NEUROLOGY EXPERT FORUM
NF1 severity?

NF1 severity?

Posted By Kathryn on November 04, 1998 at 11:21:31:







My daughter was diagnosed with NF1 at about 1 year old.  She has axillary freckling and too many to count cafe au lait spots and she continues to get more all the time.  She is now 8.  In the past two years (after annual eye exams since 1) they have seen Lisch nodules in only one eye.  Is it possible this is as far as the disease will progress?  Is it possible she could just be a "spotted child" for the rest of her life with no other symptoms?  I'm just wondering if the Lisch nodules is just the beginning or could this just be the extent of it.  Thanks.
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