Need Help on Test Results

[Padro46]

Briefly, Had high EBV numbers at the begining of the year, Symptoms Back of the head numbness (Brainfreeze feeling) Tingling/numbing around face area. Early part of the year had chest pains belly pains etc.  After many many test MRI Brain, C-Spine CT AB Blood Work and Docs to include  (ENT, Cardio, IM) Set up with a Nuero, Had a SER Upper/Lower VER Study and BER Study all Normal exception is as follows: BER study-This study shows peripheral auditory delay on the left at the 1-111 interpeak latency.  This study suggests lateral brain stem disease (this bothers me) on the left consistent with history of neuronitis.  This can be seen in demyelinating disorders or vascular lesions as well.  My neuro has told me in english I have left ear nerve damage that was probable caused by the Ebstein Barr early part of the year and rx me Alprazolam .25MG and Topamax.25 and advised nothing but time will help this and would see me in thirty days.  This is fine by me however the above statements have me concerned????

[Padro46]

F.Y.I   Had My Appointment also did a MRA   He advised MS is still needing to be ruled out due to my problems moving around and affecting other areas   Feet, Jaw, Legs, Fingers, Etc   also ordered some bloodwork  Anti NMO IgG---Lupus Panel---P-ANCA----C-ANCA----SMA-8    and told me to stay on the Topamax and Xanax  Follow-up on 12-1-08 unless Testing reveals something earth shattering.

[Padro46]

Has not done a Spine MRI, Dont want to ask for one if no need, could all of this the Inner Ear and Tingling be all left over from The EBV

[Padro46]

2nd MRI(Brain) came back good as well any thoughts on what to ask my Nuero on my follow-up appointmeny as to whats up with my problems??

[Padro46]

Thanks  I have been at this a year now and have not got very far just very broke.  Hope to find some sort of answer soon.  My Nuero has said it was probable due to my EBV (Post Viral) MRI With/Without Contrast 2-day   we shall see.

[bowhunter0310]

I have been posting on here for 7 years now.  My problems all started after I was diagnosed with chronic EBV because of my high levels.  I had no mono symptoms at the time just nausea, ear pain and insomnia.  After I started feeling a little better and the nausea went away I started with neuro problems, facial tingling, leg and upper back.  And I know exactly what you say by brain freeze, I get this and also the same feeling on my face.  I have had 4 brain MRIs, with contrast, each a year apart.  2 complete spinals, a ton of blood work, EMGs, upper GI series, etc....  Everything is normal, but I still have these symptoms.  I hope that you get the root of your problem.  Oh BTW, I posted alot of my symptoms by the name of "Jenny Wren."  I haven't posted in a while, but if you search that name you will find alot of my postings.  Hope you get better soon.

Good Luck, Jenny Wren

[Padro46]

Will be having another MRI with and without contrast Tomm. Nuero wants to compare and check for any problems with my Brain

[Padro46]

Also How long will it take to cure??

[Padro46]

Have had one MRI back in April without contrast have another with contrast Monday Brain only should my Nuero be doing a Spine as well

[DrNoopurMD]

Hi,

Thanks for writing in.
It is important to undergo MRI of the brain and spine to rule out demyelinating lesions of the spinal cord and brain which can cause these very symptoms. EBV is known to cause vestibular neuronitis or inflammation of the inner ear nerve.
http://www.ncbi.nlm.nih.gov/pubmed/3017280
Please discuss with your treating doctor the usefulness of an MRI exam in your case.
Let us know if you need more information.

[Padro46]

Tingling has included legs and ankles (Face area)

[Padro46]

Really need a thought on this

[Padro46]

bump