Need help to find treatment for Eagles Syndrome

[Gertie13]

My daughter is 19 yrs old was recently diagnosed with Eagle Syndrome.  The difficulty herein lies, that she is on Med-Cal, healthnet. Firstly, I am looking for physician who has heard of this, and takes Med-Cal. She has been shuffled to doctors, dentists, and they state they have never heard of such a thing. Guess they haven't heard of the internet.  The initial diagnosis was made by a dentist checking her for TMJ. It seems to me, that a learning facility/University would be interested in something like this. Can anyone recommend someone in California. We live in the central valley (Fresno)

[Jojo199]

Who is the physician who treated you at Hopkins for Eagles?

[daytona53]

my neuro dr. just told me that he had to look it up,, but he thought i had eagles,, and was mis diagnosed with C.M.T.,, i am waiting to hear in the next week,,, what is a ENT? i had spinal surgery last year for 2 disks,, wouldn't the surgeon have know about eagles? i am totally lost,, and in alot of pain,,,

[Peachy23]

It took me a while to find a doctor to treat Eagles once I got diagnosed with it by my ENT.  I called around to all the learning hosiptals in the area, luckily there are three.  I finally found one at John Hopkins in Baltimore and I'm having my surgery in two days to get my Eagles resolved.  I recommend you call around the area in CA and ask for the dept of Otolaryngology - Head and Neck Surgery and you will most likely find the specialist in that deptarment if they are with that hospital.  

Be patient and Good luck!

[franciscovilla]

in this patology its very important the mutidisciplinary treatament, dontolologyst, ENT, And interventional pain management , i am  interventional pain management (in colombia), and in this especiality offer diferent procedures minimal invasives, whit blockade in styloides aphofisys, if the result ok , the next time its a Continuos Radifrecuency, i recomend consult to dr. in interventional pain management board cetified.

[Erin369]

Did you try UCLA? I got a second opinion in Ohio (of all places) by an ENT called Dr. Lees, who had spent a lot of time at the UCLA Head and Neck center...He's the first guy who diagnosed me with Eagle's syndrome. I was impressed.  

I live in AZ so I had my surgery done here by an ENT at the Mayo Clinic who had done the surgery many times before.