Neurology Community
Need new CIDP therapies. Help!
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, Multiple Sclerosis, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Need new CIDP therapies. Help!

I have CIDP, and will see a research specialist next week.  Has anyone discovered new therapies for CIDP or things that I should cover with this Dr.?
Tags: CIDP
Related Discussions
2 Comments Post a Comment
Blank
Avatar m tn
Well standard treatment is IVIG or Prednisone.  Other immunosuppressents used to treat RA (TNF blockers) and cancer are other possibilities.  CellCept is interesting stuff.

Stem Cell transplants are in clinical studies and have had excellent results.  Northwestern University is doing these studies.  This is also available outside of the US.  Check their web site for requirements to qualify for the studies.  Stem cells will eventually replace all the other treatments, in my opinion.  
Blank
1291268 tn?1274814522
Thanks for that interesting information on stem cell transplants.

Thought I'd also advise the poster of the website:
www.gbs-cidp.org  
for further information and advice.

I too have CIDP, being diagnosed over 10 years ago.  IVIG didn't really help and neither did prednisone, but they may have slowed the progression but I doubt it.
The stem cell transplant process sounds like a really difficult treatment to withstand.  But the results are promising.
Thanks again!
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
209987 tn?1451939065
Blank
tschock
AB
5265383 tn?1465260698
Blank
aspen2
ON
1780921 tn?1462244109
Blank
flipper336
Queen Creek, AZ