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Neuro Specialties/TBI Identification
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Neuro Specialties/TBI Identification

This discussion is related to What next?.


What sub specialties fall under neurology?  I have finally been diagnosed with mild TBI after an auto accident as well as lupus, sjogren's and fibromyalgia.  Also have had blurred vision and eye pain.  I am high functioning with no MRI findings and the 3 neurologists that I initially saw were rather dismissive about my symptoms until neuropsych testing diagnosed me with post concussive syndrome.  My local emergency room doctors have not known how to respond to my symptoms, even after my TBI diagnosis.  My body sensations are also so changed that I have a hard time knowing if I need to be seen or not.  I  have done a lot of research so that I can also normalize my reactions.  Just had a lumbar puncture and the neurologist responded to my return calls by telling me to just lay flat, drink caffiene and take more pain medications.  I was flat on my back with headache, low back and neck pain before it started to ease.  I now know that  he could have done a blood patch after a couple of days.  Same neurologist who did not belive I had a head injury.  I am frustrated and worry that they may not respond to something that needs immediate treatment.  I am tired of being both patient and patient advocate at the same time.  l know that there is general neurology, neuropsychiatry, neuroopthamology and muscular neruology.  Any other subspecialites?  How do you know if you even need a neurologist who may also treat a condition or if a just specialist would be fine?  My care is also complicated given even some of the symptoms overlap, so it is important that I have a team of doctors who consult with one another.  I go to a teaching hospital and have tried to see specialists from there so that almost all of my medical records are accessible.  Would it also be useful to carry a medical identification card to identify myself with TBI?  I am doing a year of outpatient rehab at Moss Rehab in Philadelphia which is two hours from where I live. My physiatrist is wonderful and oversees my care there and obviously understands the effects of head injury.  Going there would not be practical for emergency care and I need to rethink what I need for local care and who needs to understand TBI as well as the condition that they are treating me for.    
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