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Neurofibromatosis
by Chai430, Nov 08, 2009 01:22PM
Do you know of any organisation that assist people who have debiliting disorders that require extensive mgt and treatment?
The person I have in my mind my brother. He is diagnozised to have NF1/2 and he is in Uganda but with no clinical mgt of his case bse of lack of expertise in that area.
Any other guidance on how his case can be managed will be greatly appreciated.
Thanks.
The person I have in my mind my brother. He is diagnozised to have NF1/2 and he is in Uganda but with no clinical mgt of his case bse of lack of expertise in that area.
Any other guidance on how his case can be managed will be greatly appreciated.
Thanks.
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