I'll try and keep this brief. I'm 34, mother of two, I own my own business. I developed symptoms 7 years ago after getting over a virus, Dr believed it to be CFS due to general blood screen showing up normal apart from low white cell count. Started with pain in my neck, muscle pain. Then started getting the pins and needles - arms, legs, mostly in legs. One morning awoke with pure pins and needles from waist down and had to wait a good half hour before normal feeling returned. Experienced muscle pain and fatigue for months, then experienced tendonitis in leg though I had not been working out. Fell pregnant about 1 yr after symptoms began and felt perfect, thought it was all gone and cured. After pregnancy - multiple infections (tooth, respiratory, gyneacological) then developed IST (Inappropriate Sinus Tachy) with high blood pressure. Tested for Thyroid and Pheo - results negative. Neuro symptoms continued: spots in vision, halos, headaches, pins and needles in legs, tingling and water running sensation down legs also. Flare ups worse after viruses like colds and such. Continued for a few years then worsened this year. Developed uneven pupils - anisocoria - intermittent, shows up more when I'm run down or having the headaches.
This year, pins and needles down both arms and shoulders on waking up, pins and needles from waist down when waking up. Pins and needles in any limb where I lean on it for even a few seconds. During flare ups I feel like I've been hit by a car, muscles hurt to touch even slightly, pain in neck, pins and needles, sleepiness, foggy thinking. Mood swings developed over past months whereupon I have rages at the end of my "cycle", seen Dr and she thinks it's hormones. I have muscle weakness, drop things all of the time, always banging into things. I am now housebound and struggling to walk up the steep hill near my home. I get cabs into town, I can barely tolerate moderate exercise. I experience severe fatigue like aches in legs and racing heart on exertion like climbing stairs or the hill near my home.
I have seen 4 cardiologists, 3 endocrinologists - discharged by all of them after tests showed that I have IST (Sinus Tach with no known cause). I'm in the UK and on a waiting list to see a Neurologist in late January. (My mother has Ankylosing Spondilitis which is autoimmune). I've been tested for Lupus which was negative, B12 is normal, Folate is low, Ferritin has been low then back to normal on numerous occasions.
Can anyone relate? My condition is worsening and has been undiagnosed since it started in 2005. Does this sound Neurological?
I feel your pain. My pain start in 2005 too and the pain i'm experiencing is similar to what had just described except that now I'm feeling pain on my upper right chest right above my chest. I've seen a neurologist and i was told that I had degenerated disc, but i'm experiencing more symptoms more. I'm still looking for answers
Hi, thanks for your response, my mother has problems with the discs in her cervical spine apparently its connected to her ankylosing spondilitis, I know its hereditary. I did have an x ray on my neck back in 2007 and the Dr there said that my neck looked like I had whiplash but I hadn't, I'd had the x ray done for other reasons.
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