Neurology Community
Neurology
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Neurology

My daughter is 20 months old. She has been having seizures since she was 10 months old. No one believed me until i taped them. She was then referred to the urgent neurology clinic. She was not put on medication to control the seizures until she was 12 months old. i was told shes fine unless they last more than 4 minutes then take her to the hospital. She was booked for an mri but i was told she simply had epilepsy and the mri would be normal. Well they found massisve deteioratation in the white matter, She was immediately taken to surgery and had a spinal tap and muscle and skin biopsy. They were testing for canavan disease and sent it to the U.S. A Gruelling wait but it came back negative. She just started walking about 6 weeks ago. The doctors are telling me I am going to lose her. She was just examined and they are now testing her for leukodystrophy. Her next MRI is not until jan 2011. I am on a rollercoaster, I am not sure what to do next to get her the  help she needs.
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
1780921 tn?1462244109
Blank
flipper336
Queen Creek, AZ
209987 tn?1451939065
Blank
tschock
AB
4760166 tn?1398360913
Blank
The_beat_goes_on
TX