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Numb Toes and Bladder Issues - MS?

by marriedwbaby, Apr 01, 2008 03:17PM
In Aug 07 the tips of my 2 big toes went numb.I eventually went to the doctor who said she had no idea what would cause it,so I let it go.In Oct, I began having some bladder issues. I felt like something was pushing on my bladder but the symptoms came and went.I finally went to the GYN in Nov. He said I had prolapsed uterus. I had a TVH on 12/17/07. Surgery was "uneventful".Within a week after surgery the pressure started coming back..gradual at first, then right back to the way it was b4 surgery. At 2 week postop visit I told him about it. He said it was probably my bladder readjusting.Within a few days after that my discomfort was UNBEARABLE and I went to the hospital.They had no explanation.The bladder pressure would ease some but never went away.Within another week I truly thought i was going to die! The pressure had kept me up all day and night for nights.I have been hospitalized for the pressure with my GYN telling me he had no clue! They did a CT scan that showed nothing.No pain medication helped anything.He sent me to a urologist in Atlanta who told me I had retention.I came back in a couple of weeks for a cysto and urodynamics. Cysto showed everything looked fine but the uro showed that my bladder was not contracting.By this time, the pressure had turned into just feeling like I had to urinate all the time.NOTHING HELPED.I could not sleep, eat, and became depressed.The doc gave me flomax.The feeling did start easing but didn't go away.Slowly the feeling eased more.But I got a call from my GYN earlier this week, who told me that the urologist in Atlanta thinks I need to see a neurologist for possible MS. I have been on zoloft now for about 5 weeks.I had a  psychiatrist who gave me heparin and that night I slept all night for the first time in all these months! I am finally starting to feel normal again but am waiting to hear from the neuro. I'm scared.Is it possible that it has just taken me several months to recover from my bladder readjusting? or MS?
Member Comments (1)

by Carol in PA, Apr 01, 2008 05:41PM
Numbness in the feet may be the beginning of neuropathy.
I had this problem about a year ago, and began taking B complex vitamins, on the advice of a knowledgeable friend.  The feeling returned to my feet immediately!

The bladder problems sound like they may be neurogenic bladder.  This may be due to some kind of damage of the nerves to the bladder.  
One of the complications with Lyme Disease is damage to the nerves, which can result in neuropathy and also neurogenic bladder.

===========
"Lyme Disease can cause an interstitial cystis leading to bladder pain relieved by urination.   A neurogenic bladder can develop with either hesitancy, frequency, loss of bladder awareness, urinary retention, incontinence or the symptoms of UTI (urinary tract infection)."

Quoted from When To Suspect Lyme Disease, by John D. Bleiweiss, M.D.
http://cassia.org/essay.htm

===========

There are a number of people with bladder problems on the Flash Discussion group at Lymenet dot org.   For some of them, bladder problems were the only symptom they had of Lyme Disease.

There is also a group of people there who were diagnosed with Multiple Sclerosis, and later found out they had Lyme Disease.
Some researchers believe that many people with symptoms of MS actually have Lyme.

Wishing you the best,
Carol
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