HELLO TO ALL,my son is born of consanguinous marriage about 4 years back,it was a caesarian section and the baby weighed 4kgs.Baby cried and the was not so loud.The ANC care was uneventful,regular monthly check-ups were done and regular ultra sonography of the mother was done.My boy refused mothers milk from day 1,we went from pillar to post,he had sun-sign,my ife was sceened and the report said she is CMV positive,ANC torch was not advised by the then treating doctor,when baby was screened it was found then rubella igg or igm was reactive.my wife received antiviral drugs and my baby symtomatic treatment.My baby's CT showed porecephalic cyst on rt side without mass affect ,no midline shift,still my baby was refusing feeds ,my wife used to feed him focibly,my baby started losing his weight.Neurosurgens told porecephalic cyst is not responsible for baby's failure to thrive but pediatricians told the culprit is porecephalic cyst ,we were in the middle helplessly,mean while my baby developed corneal ulcer,we appraoched ophthalmologist who operated but the graft was rejected second surgery was done that also was a failure,still my boy is refusing feeds,now he is 4 years old weighing 10kgs,HC 52 cms.we both are doctors staying helplessly,plase please help my baby please help to get a proper diagnosis.........docram.........
I am sorry about your boy's health issues. I am also sorry to tell you that I do believe he has congenital rubella syndrome, for which there is no cure, and it is a devastating illness. Everything you say points to that unfortunate diagnosis, including your baby's failure to thrive, cataracts, and the brain malformation. Many years ago this virus afflicted many people, so vaccines were developed to prevent it, thus the condition is rare today. For more information about the disease, you can go to these websites:
www.hknc.org/Rubella.htm (be sure to capitalize Rubella)
findarticles.com (and type in the search rectangle "congenital rubella rehabilitation")
Hope this helps and God bless you and your family.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.