Pain at base of skull and on my left temple,symptoms of Myeomalacia

Have a Venous Anomally that always hurts and my left temple always hurts
skeetelmore65

     I am writing you because I have so many symptoms and never know what is coming the next day. This, will be challenge,but,I am looking 4 help,so here it goes.I will make it short and brief as I can.
     I am having swelling at the base of my neck off and on,with chest compression,hypertensive feeling,BP goes back and forth with Diastolic pretty high when resting,pains strike in head mostly on temple area(can hit both), but at the BASE of my NECK where the Venous Anomally is located. I have been diagnosed with VA and was told not to worry, but it is hard to do when the pain is so severe at times that a person could not just forget @ it. I don't know if this is related to the C5-C6 spinal diskectomy or the nerve blocks(hit by one), that I was given. I truly believe it is BAD and need advice. I will add a photo of one of the MRI shots that I have on file.
     It all started when my neck was bothering me back in '03 and I was working 60+ hrs a week. I couldn't find a place to rest my head and night eventually making me have to quit my job. A chiro diagnosis was,that I had no curve in my neck,I had a tumor in my right shoulder,and that my shoulders were all messed (his words).I went in to see NS that was recommended to me and they done surgery on my C5-C6 and ever since that surgery I have gone downhill.
     RIght now, I am having pain in my right shoulder(been told it was bone on bone),but it switches shoulders with cracking and popping and has developed indentations(atrophy)of the muscle and the pain is miserable. Back then, I only had the muscle pain in my right right arm muscle and my NS even said it was my C5.  
     I have to state this because this is what my husband thinks has happened to me and he even agrees that it could be both(my neck surgery and that I was hit in my nerve fibers or something in my back during an ESI ).I had to get nerve blocks because the pain was beginning to get too unbearable.The first two did help me for a short time and I had some movement,but the third one..the doctor hit something, while performing the precedure. I jumped on the table like a lightening bolt had struck me.I raised my head from the hole to ask the doctor..what happened?He aswered with "Friction"in a studdering voice.He told me to sit up real fast then got in my face and asked me,"Are your ears ringing, do you have heavy breathing"? I told him that my hands and the soles of my feet were numb and they,still are today,besides all of the other things that I am dealing with in my body.I even started feeling stabbing pain,ice-pick headaches,sore spots all over and my head has sore spots that I CAN'T EVEN TOUCH MY HAIR. I have got to get some answers somewhere and i know they could be here.      
     It has moved to every part of my body,so after seeing the chiro( NO ADJUSTMENTS) they don't want to touch me.WHY? What could be so wrong here?I went in to see a NS that was highly recommended by an anthesis,in the family.I was told by a NS that I had a ruptured petrusion and I needed a C5-C6 spinal diskectomy '06, in which I had, but they went in on my left side of my neck(due to being a professional vocalist), instead of right,to bypass some nerves( I went to see that NS, 9 out of 11 months,in the same year and he is sending me to a NL).
     What this ALL has come to is pain in every part of my body, but my head seems to always be involved. My head feels like something is in it or something is causing it to feel swelled, NUMB. I have whole numbness in the left side of my body. This makes the third time,this has happened and the doctors(NL and NS) can 't find anything. It is a horrible feeling for that to happen. MY face, in my left cheek(face) felt like I had been give a shot of NOVACANE,by a dentist.
     I have really wondered and thought,that I have been having TIA'S or was having a stroke,heart attack,since my BP has been going crazy here lately.MY resting number is high,and always over 85.My systolic is usually perfectly normal,but the LOW number of DIASTOLIC is sporatic.It is really high most times like 104 and when it does that my HR is like 108. IT is scary, but wondered if that might be a symptom of me titrating down from my Fentanyl Patch,but the only thing is that I should have stabolized. It has been over a month since, I was on 75mcg and now am on 50mcg.
     This is WHY I AM WRITING YOU.I have been having some awkward things happening to me,that IT is/has been utter "H", sometimes.
     The symptoms that most stand out are: burning in the extremities and sometimes it feels more like fire is going from one end of a vein to another,pinching feelings also on the extremities and in my chest 2. My muscles always ACHE and sometimes,the RLS  feels more like WBS(Whole BODY Syndrome:)).The veins feel like they burn,go from point A to point B like it runs through the vein.It feels as if my body is attacking itself,my memory is gone. I am weak and shaky as I type this,IT can get really bad at times and I am so shaky and had to stop and start typing many times to complete it.
     I had a lump come up on the inside of my wrist(left),that I thought was a bloodclot,but my PCP, told me it was a ganglion cyst, but it seem to have grown up onto the top of my hand,after I got home.I haven't seen him since to tell him @ it.I am just praying for it to go away.Right now, it is aching so bad on the top of the hand and through it,that I had to rub biofreeze all over it just to get some relief.
     The weakness is really creepy because it is like my brain is not sending the correct signal sometimes because I can't get the letters correctly spelled or I get everything BACKWARDS,IF I don't watch 4 it.I hurt everywhere. My shoulders have this digging pain that goes deep into it. So many symptoms there is no way to list them all, but trying. I never ever know what is coming my way next.I just PRAY.
     I had an episode last week that made me feel like I was having a heart attack or stroke.The whole left side of my body was NUMB. MY face that felt like novacane had been shot into it was completely numb,that felt like it was moving over to the right. My right hand was numb.
    What in the world am I going to do now?I have been to so many NL,that I can see that I am getting no where,but who do I see?A cardiologist,a Pathologist or an Oncologist,I don't know.Please help. I hope I dont' wind up having an aneurysm because of a Venous Anomally that has turned into a Caverness Malformation or THIS POSSIBLE MYEOMALCIA(even my NS said it was a possibility due to me having ALL of the symptoms,even me having all of the CHEST COMPRESSION...ASCENDING SYNDROME?? Could it possibly be a Cavernoma, since I do have calcification in my sinuses? I do know something is seriously wrong here and no one can find. Thank you for any info on this matter and I am sorry 4 the length of it:))) <3 Karen