Parasthesia

Hi all .. i am a 24 years old guy .. my case started about 2 years ago and till now i didnt get a defined diagnosis of the condition. It was 2 years ago when i first felt like an electric shock on my left knee for about 2 days and it feels like hot when touching it. after that i started experiencing a parasthesia on my both legs especially on my knees , its NOT numbmess or needles sensation BUT its something like hypersenstivity , that i always feels unconfortable with the pants am wearing , i used to pull the pants over my knees so as to try to get this feeling out . However , the condition kept developing with my legs and i started to have the same feeling on my hands ( especially the elbows) , my jaw and my skull .
I saw a neorologist and he asked me for a Reumatoid factor , ANA , AntiCCp , Epstien bar and Rose wallar Tests , first i got a weekly positive RF, ANA and Rose waller test in one lab while i got it as Negative in another immunological lab profession. The neurologist told me that the tests are normal and asked for an MRI brain for Multiple scelorosis dought , but it went good and all is OK.
He gave me Dogmatil with Trilepetal , some drugs for nerves for aobut 6 months , but i stopped them after i had some convulsions and depression.
After , i saw another neurologist and he told me i may have a rare type of syndromes named "fibromygalia" or something similar , and he gave me some corticosteroids with antidepression drugs for 1 months. i felt good for about 2 months and the condition started again but more worsen.
Am now so congused , actually unable to concentrate in my work or anything after developing the following symtpoms:
1) Parasthesia on both legs , arms , and somethimes the upper head (skull).
2) Frequent muscle tremors in non-specific body parts ( legs , arms , back )
3) recently morning headaches that last almost the whole day.
4) fuzzy vision , i see quite well but am always feeling that something is ubnormal with my eyes , like fatigued ot tensioned ... something unexplained.
5) 2 weeks ago i had tremors on my both eyelids and still till present.

i had a magnesium , calcium , CBC, potasium and sodium tests and all is well gooood .

So , please advice me what do i have to do after .... am trying to forget all those and live normally as all doctors says to me like my mother , father and brother , but actually i cant .
Please advice. and would be greatful .

[engmoustaffa]

sorry i forgot to add something that may help ... i had a diabetes Test and nerve conduction velocities and all was positive and OK..

Thanks and sorry for bieng irritating ...

[mysteryillness]

Sounds like something neurological. I am suffering neurological symptoms too which no one has been able to figure out. Too many symptoms to list all but really strange ones like you are mentioning. I get electric shocks everywhere all over and they sting so much! feels like I am being zapped all over or stung by thousands of bees. I constantly feel so TOXIC! I've also had the feeling of something crawling on the top of my head,feelings on my body like the cold sting of vick's  vapor rub,bugs crawling under my skin(so many different types of parasthesias),chills,fevers,night sweats and severe low drops in temperature,severe chest pain,vertigo,balance and coordination problems,stiff neck and back,severe head pain-brain inflammation-can hear cracking in my head,light and sound sensitive,things are louder and brighter than they should be,ringing in my ears, feelings of not getting enough oxygen,convulsions,speech slowing,limp body-losing control of my muscle movement,problems with numbness,spasms and twitches,have to urinate 24/7,word finding where I can't remember the name of a word and have to describe it to people to get the answer when normally I'd know it. Like tree for example. Putting things in the wrong places or not remembering what I've said or done the very next minute,then saying or doing them again like it's the first time,feeling foggy and disoriented (my mom usually accompanies me to my appointments because I am too out of it to fully understand or remember what happens in the appointments),floaters in vision,blurry vision,blood vessels inflamed in my eyes,motly my left(reacurring red eye)Dilated pupil in my left eye(reacurring),oh and my heart beat speeds up and overlaps. Beating too many beats  among so many other things,but now lyme disease is being investigated as a possible diagnosis. What's interesting is all my symptoms completely match. You are not being irritating! You are suffering and you need help! It's hard to get though when  we clearly know we are really sick and because we have normal tests,no one believes us! With doctors and specialists suspecting M.S.,but after having "normal" MRI's,having no idea and giving up,I took matters into my own hands and became my own advocate out of complete desperation. Eventually I came across lyme disease and realized Lyme is very similar to M.S. They have tested you for this too(M.S) because you are dealing with similar symptoms. However,I have read that MS plaques can be in either the brain or spine. I haven't had a spine MRI as of yet,only brain but that has come back normal. Often the testing isn't accurate for lyme disease. (Especially here in Canada) It' s not advanced enough to pick up enough evidence for a diganosis or it can't because the bacteria gets so deep into your body's organs,tissues and cells that it leaves your bloodstream and won't show up in blood tests. Often tests are negative when you clearly know something is really wrong! Often when your tests are negative,medical professionals assume you're suffering psychologically instead of physically. It's the most frustrating and scary thing to go through. Do you know anything about lyme disease at all? Anyone can get it very easily from a tick bite and not even know they've been bitten. You sometimes get a circular red rash but not everyone does,the bug is infected with the bacteria and it spreads into your bloodstream then goes into your organs,cells and tissues making it nearly impossible to diagnose and find. And you stay really sick with all kinds of scary and really strange symptoms and you get worse and worse and it remains a mystery to doctors in most cases because it's so hard to diagnose. I don't know what is causing your illness and symptoms,but I do know that it sounds pretty similar to what I'm dealing with and that lyme might be good to try to rule out. I happen to also know from all the research I've done that lyme doesn't respond to steroids. I find it interesting that you have felt better for a bit then have relapsed again. My symptoms are chronic always there,but are always constantly alternating and changing back and forth to different locations of my body then sometimes I feel a bit better and then bammm- relapse with horrible attacks. The other thing with lyme is the tests change as the bacteria moves. So you may have a borderline or even positive test then when tested again,it might be negative. Common in lyme. Apparently tests for lyme are more sensitive in the States but aren't always accurate in all cases but for you it might be worth it to ask to be tested for that,especially if you have been outdoors at all. Lyme doesn't just stay in forested areas,ticks are everywhere outside. Many people don't know this and think it's rare to get it when in fact it is very easy! They are the most common bug that carries the bacteria but I have read that mosquitos and even fleas can carry this type of bacteria. So it would be one of the easiest things for someone to get and not even know until it gets later into the disease when symptoms get really bad. However,it could be anything. I just think it would be good to pursue as a possibility since it seems to fit but if not,it really does sound neurological so I would get as many different opinions as you need before you finally find someone who will listen and will help. It
good that you have been through an immunologist. I'm being sent to one too because of a reaction I had to a drug I was put on to treat what my LLMD suspects is lyme.  If you suspect lyme at all,it's important to find a lyme literate medical doctor - (LLMD in your area to look into it.) Many other doctors/specialists don't have the experience and education to know what to look for to diagnose and treat it properly. Don't give up! I know it's hard. I'm going through it too and while I'm getting closer,it's so complex that I don't have a for sure diagnosis yet either but I have found a specialist that is taking me seriously finally after seeing about 20 different specialists who couldn't find enough evidence to point to any one thing and gave up. He strongly suspects lyme but it is very hard to prove. You should research it though. You will probably be surprised at how similar your symptoms are to the list for it. Very similar to M.S. symptoms but each case won''t usually present in the same ways. There may be similiarities but it is a multi systemic condition and can effect anywhere in the body and several different areas. I wish you luck. You can find a lot of info on lyme on the canlyme site http://www.canlyme.com

Even if you're not in Canada,they have very up to date information there.

Hope that might help you! The other thing is that studies have found that a lot of cases of fibromyalgia and chronic fatigue as well as M.S, among many other neurological diseases,like ALS,Lupus,Parkinsons,Alzheimers's disease have had the lyme bacteria involved where they have been given those diagnoses and then found out after that they are positive for lyme,so it could very well be linked. Even some cancer patients have had both lyme disease and lymphoma/leukemia. I've been lableled with suspect diagnoses' that have involved depression,fibromyalgia,chronic fatigue and the possibility of M.S. So that's where we also sound similar. Good luck! I know how scary and frustrating this all can be! I wish you all the best and may you find the help you need no matter how long it takes and be well again in the future! :)

From one sufferer to another

Hugs!