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Neurology  (Expert Forum)
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Paresthesia Therapy????
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Paresthesia Therapy????

by Jeane__0, Dec 30, 1998 12:00AM

  Dear CCF Doctors,
  Thanks so much for this wonderful forum.  I posted a while back and hope  you can shed some further light.  I reported to you that I had a drug reaction resulting in SFN (small fiber neuropathy). Confirmed through tests. When I wrote to the Federal Drug Admin to get actual adverse drug reports.  They listed no SFN but Paresthesias.  Since most of the Parestheia cases say ONGOING THERAPY next to them, what kind of ONGOING THERAPY (as in ongoing therapy for  6 months to 2 years then no more data if it's still ongoing) is used to treat a Paresthesia.  It seems alot of interchanging goes on with the word Paresthia and small fiber sensory neuropathies.  So could these "paresthesias they list really be small fiber neuropathies"  SFN require ONGOING Treatment, but paresthesia implies a passing sensory thing. iT'S VERY CONFUSING. I have found quite a few people who have had the same SFN from the drug and we all have some arthritic type symptoms, stiffness and joint pain as well.  All of us have
   had hundreds of tests all negative except the SFN.  Any ideas?  We are all merely trying to get some help, but first we need to understand if a paresthesia implies a minor disturbing one in a while sensory thing, then how can people be receiving ONGOING THERAPY FOR 6 PLUS MONTHS OR MORE.
  Do you have any ideas?  We are just wanting to know is this forever! Any ideas PLEASE!!!
==========================================================================================
Thanks for the question. I'm not sure how much light I can shed on your concern. Paresthesia is a fairly generic term that is used to refer to an abnormal tingling sensation, sometimes described as a pins and needles sensation. It does not define an etiology but is descriptive. The symptoms are usually thought to be due to injury to a peripheral nerve. Some patients with SFN will describe a burning pain more than a pins and needles sensation. As you know the treatment of SFN is inadequate at this point. If an offending agent can be found then it is removed but the symptoms may linger. Research continues in this area and I trust that your symptoms are not too diabeling. Good luck
This information is provided for general medical education purpsoes only. Please consult your doctor regarding diagnostic and treatment options.





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