Paresthesia Therapy????

Posted By Jeanne on December 30, 1998 at 05:33:10:







Dear CCF Doctors,
Thanks so much for this wonderful forum.  I posted a while back and hope  you can shed some further light.  I reported to you that I had a drug reaction resulting in SFN (small fiber neuropathy). Confirmed through tests. When I wrote to the Federal Drug Admin to get actual adverse drug reports.  They listed no SFN but Paresthesias.  Since most of the Parestheia cases say ONGOING THERAPY next to them, what kind of ONGOING THERAPY (as in ongoing therapy for  6 months to 2 years then no more data if it's still ongoing) is used to treat a Paresthesia.  It seems alot of interchanging goes on with the word Paresthia and small fiber sensory neuropathies.  So could these "paresthesias they list really be small fiber neuropathies"  SFN require ONGOING Treatment, but paresthesia implies a passing sensory thing. iT'S VERY CONFUSING. I have found quite a few people who have had the same SFN from the drug and we all have some arthritic type symptoms, stiffness and joint pain as well.  All of us have
had hundreds of tests all negative except the SFN.  Any ideas?  We are all merely trying to get some help, but first we need to understand if a paresthesia implies a minor disturbing one in a while sensory thing, then how can people be receiving ONGOING THERAPY FOR 6 PLUS MONTHS OR MORE.
Do you have any ideas?  We are just wanting to know is this forever! Any ideas PLEASE!!!