Pineal Cyst

[jersey0329]

I have seen this discussion a few times but wanted to add my 2cents. Two years ago an 8mm pineal cyst was found on an MRI along with some enlarged lymph nodes and some fluid. I have suffered from migraines for about a year prior to the MRI. They have now gotten worse with stabbing shooting pain behind my eye and my upper left eyelid twitches all the time which is very annoying. I am trying to get a new MRI and get to a neurosurgeon. I am SO frustrated. They want to throw different meds at me which DON'T WORK and blame this on this illness or that illness. *sigh*


This discussion is related to pineal cyst and headaches.

[Dr_Smita_S]

Hi,

Small pineal cysts  are common and can be found incidentally on routine neurological exams. They are usually asymptomatic.Large cysts can compress adjacent structures result in symptoms.

Depending upon the size and the compression the symptoms can range from headaches, increased pressure on the brain, vision abnormalities, seizures and other serious complications.

A complete workup including a MRI scan and tests for endocrine abnormalities are done to ascertain the extent of the tumors.  Intervention (medical or surgical) is dependent upon the type of the tumors (cysts), severity and duration of the signs and symptoms.

A prompt neurosurgical consultation is necessary for you for complete evaluation and treatment.

Take care,
Regards

[Jules77733]

I couldn't have put it better myself. My left eyelid twitches, too, and it IS really annoying!!!! It doesn't happen all the time, but it happens enough for me to add that to the list of "symptoms".

And they seem to love prescribing medication to me, too. To me, it feels like putting a band-aid on a bullet wound. They should at least admit that pineal cysts can cause problems and it's a possibility, but that due to the dangerous nature of the surgery that would be required to remove it, they want to exhaust other options, first. They don't, though, instead choosing to pretend that pineal cysts never cause any issues. It's driving me crazy, really.